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Saving Babies Lives

NHS England’s National Clinical Director for the Maternity Review and Women’s Health evaluates the Saving Babies’ Lives Care Bundle for reducing stillbirths: It has never been safer to give birth in this country, but there is more that we can do and reducing stillbirth continues to be a priority for the NHS. There are currently […]

Publication of delivery plan technical guidance, saving babies’ lives care bundle and core competency framework

Letter from Dame Ruth May, DBE, Chief Nursing Officer, England; Dr Matthew Jolly, National Clinical Director for Maternity and Women’s Health, National Maternity Safety Champion, NHS England and Jess Reed, Deputy Chief Midwife, NHS England.

First-ever therapy for rare genetic disease in babies to save lives on the NHS

Babies and toddlers with a rare and fatal genetic condition can now receive a life-saving treatment on the NHS for the first time. Sebelipase alfa (Kanuma®), an enzyme replacement therapy, will become the first treatment available on the NHS for Wolman disease, a condition which presents in babies and children under two years old. Following […]

First baby receives life-saving gene therapy on NHS

A 19-month-old baby girl called Teddi has become the first child in the UK to receive a life-saving gene therapy treatment for the fatal disorder, metachromatic leukodystrophy (MLD). The revolutionary gene therapy, known by its brand name Libmeldy®, has a list price of £2.8 million and was the most expensive drug in the world when […]

World-first national genetic testing service to deliver rapid life-saving checks for babies and kids

The NHS will be able to diagnose and potentially save the lives of thousands of severely ill children and babies — within days rather than weeks — with a world-first national genetic testing service launching today. Announcing the groundbreaking new service at the first-ever NHS genomics conference in England, NHS chief executive Amanda Pritchard hailed […]