John Holden

The new Congenital Heart Disease review: 21st update – John Holden

Your feedback In response to interest expressed by all three of our engagement and advisory groups (Providers, Clinicians and Patient & Public), we are planning to organise a joint meeting of these groups and the review team are currently working to find an acceptable date for this meeting. We will let you know as soon […]

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The new Congenital Heart Disease review: 20th update – John Holden

Your feedback Some of you have asked about the arrangements for our different engagement events, and the demands they place on people. Most recently we’ve been asked about the Easter holiday events for children and young people. We are running these events during the holidays to allow as many children and young people as possible […]

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The new Congenital Heart Disease review: 19th update – John Holden

Your feedback Thank you to everyone who has submitted documents and references in response to our call for evidence. We have passed these on to the team at ScHARR who are conducting a literature review for us. The deadline for submissions has now passed and so we cannot guarantee that any further submissions will be […]

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The new Congenital Heart Disease review: 18th update – John Holden

Your feedback We have been asked whether investigations into the quality of care at local congenital heart units are linked to the work of our national review.The answer is that although they are separate from our review, we are receptive to any lessons from these reviews which can help us to commission the best possible […]

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The new Congenital Heart Disease review: 17th update – John Holden

Your feedback I am often asked whether NHS England can accelerate work on the new review. With this in mind, we are always looking at ways to do several tasks at the same time. This could really help, so long as we avoid the mistake of prejudging the outcome (e.g guessing what we might hear […]

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The new Congenital Heart Disease review: 16th update – John Holden

Your feedback In the comments section of the blog and elsewhere, we’ve been asked what the review team will do about quality or safety concerns in any of the units currently providing congenital heart care. This is a big question with at least three distinct dimensions: first, the potential impact of continuing uncertainty on the […]

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The new Congenital Heart Disease review: 15th update – John Holden

It’s the first blog of 2014 and so I’d like to wish my reader(s) a Happy New Year. Your feedback A question was raised with us about membership of the Clinical Advisory Panel. The specific question was about representation for paediatric intensivists, but it raises a more general point about how the review gets comprehensive […]

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The new Congenital Heart Disease review: 14th update – John Holden

Your feedback Thank you for your comments, questions and challenges about the review during 2013, all of which have been gratefully received. As promised last week, this is just a short blog to publish a few things that are overdue and I didn’t want to leave until the new year.  In particular, there are notes […]

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The new Congenital Heart Disease review: 13th update – John Holden

Your feedback We often get questions about Patient & Public representation on the CHD clinical reference group (CRG). It’s become a bit of a cause celebre – there is a concern that some people who wished to be patient representatives on this CRG were excluded. This has been investigated, and NHS England is satisfied that […]

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The new Congenital Heart Disease review: 12th update – John Holden

Your feedback In the last couple of weeks we’ve had a series of face to face meetings with three different engagement groups, which have helped us to understand what’s important to them, and how we work together in a way that’s challenging, honest, and productive. I gave the same “Update” presentation to all three groups […]

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