Leadership Alliance for the Care of Dying People

In July 2013 the independent review of the Liverpool Care Pathway (LCP) published its report ’More Care, Less Pathway’ . This recognised that where the LCP was used properly, many people died peaceful and dignified deaths but that in some cases, the LCP had come to be regarded as a generic protocol, which was the wrong approach.  The review panel recommended that the use of the LCP be phased out within 6-12 months.

In response to the report’s 44 recommendations, the Leadership Alliance for the Care of Dying People (LACDP) was set up to lead and provide a focus for improving the care for these people and their families.

The Alliance is chaired by Dr Bee Wee, National Clinical Director for End of Life Care at NHS England. Membership of the LACDP includes those statutory organisations to which the review panel addressed recommendations, as well as other organisations, including those from the voluntary sector.

Care Quality Commission (CQC) NICE (National Institute for Health and Care Excellence)
College of Health Care Chaplains (CHCC) NHS England
Department of Health (DH) NHS Trust Development Authority (NTDA)
General Medical Council (GMC) NHS Improving Quality (NHS IQ)
General Pharmaceutical Council Nursing and Midwifery Council (NMC)
Health and Care Professions Council (HCPC) Public Health England (PHE)
Health Education England (HEE) Royal College of GPs
Macmillan Cancer Support Royal College of Nursing (RCN)
Marie Curie Cancer Care Royal College of Physicians (RCP)
National Institute for Health Research (NIHR) Sue Ryder Care

(Marie Curie is also representing Help the Hospices and the National Council for Palliative Care. Sue Ryder is also representing the National Care Forum (NCF) and the Voluntary Organisations Disability Group. Macmillan Cancer Support is also representing the Richmond Group of charities.)

View further details of Alliance members.

Our work

The immediate objectives of the Alliance are to:

  • support all those involved in the care of people who are dying to respond to the findings of the review; and
  • be the focal point for the system’s response to the findings and recommendations of the LCP review.

Amongst other things, the Alliance is:

  • developing advice for professionals on individual care plans and other arrangements in place of the LCP;
  • considering how health and social care can best address the recommendations in the review about the accountability and responsibility of individual clinicians, out-of-hours decisions, nutrition and hydration and communication with the patient and their relatives or carers; and
  • engaging with patients, carers, the public and clinicians as part of developing a set of desired outcomes and guiding principles  that will describe what high quality care for people should look like in the last days and hours of life no matter where they are being looked after.

Interim statements on the work of the Alliance are available below.

Get involved

Thank you to everyone who gave us their views on the proposed outcomes and guiding principles that will describe what good care in the last days of life should look like.

The engagement activity closed on Friday 31 January 2014.

We are now collating and analysing all the feedback which is being used to inform our work and we plan to publish a summary of this feedback shortly.

Since the end of October 2013 the Alliance has been asking patients, families and carers, professionals and organisations, with an interest in the care of dying people, to give their views on the proposals, by either attending a workshop, completing an on-line survey, or emailing LACDP.getinvolved@dh.gsi.gov.uk.  We are now collating and analysing all the feedback which will be used to inform a shared vision for care focused on the final version of the outcomes and guiding principles.

We will be posting regular updates on this web page about this work.  If you have any queries about the engagement activities, please email england.contactus@nhs.net.