Tess Jewson

Tess Jewson@NHS from 06/08/18 to 10/08/18

Twitter: @maritess_mt

Condition: Pulmonary Hypertension with Eisenmenger’s Syndrome

Place of treatment: Royal Brompton Hospital, S. Kensington, London

Hello! My name is Tess and I’m 27 years old. I am a self-employed Music Teacher and an Ambassador for the PHA UK charity. I was a poorly baby and at 6 months old, I had a lower lobectomy, meaning I only have one lung. This caused many breathing problems for me as I grew up, but 10 years ago my life changed forever.

In 2008, I was diagnosed with the incurable heart and lung condition Pulmonary Hypertension (PH) and had a 3 month prognosis. Unfortunately PH can be misdiagnosed as asthma, and that was my case too. We found out my PH is caused by a Patent Ductus Arteriosus, known as a hole in the heart. This hole never closed up and has led to high pressures in the pulmonary arteries in my lungs, leading to heart failure.

Despite my PH, I’ve always been determined to live life to the full! I play the piano, cello and trumpet and I have toured in orchestras across Europe! I have attended 2 universities and have gained a Degree in Music and a Masters in Music Therapy.

My husband, Terry and I, celebrated our first Wedding Anniversary in April and we live in Chelmsford with our poodle, Izzy. It is thanks to the wonderful PH team at the Royal Brompton Hospital, who have helped and supported me to get to where I am today!

I take full advantage of my health condition by raising as much awareness for PH as I can, so people can learn and understand this serious and incurable condition. I achieve this by working with charities and sharing my experiences via my weekly YouTube vlog, my PH blog and social media platforms.

Relevant links:

www.youtube.com/channel/UCP3uafeuekr6IkLe5frfV0w?view_as=subscriber

musichelpsmebreathe.blogspot.com

www.facebook.com/PHighterTess/

www.instagram.com/phightertess/

www.phauk.org

www.phocus2021.org