Dad James Jeynes tells of his fight to get a Personal Health Budget for his terminally ill son Lewis that could help transform his life while also saving the NHS money:
I think I am the luckiest and proudest father in the UK and I have thought that since my son was born in 2004.
Lewis Jeynes is a very special little boy living in Doncaster, and this year he will be 12. Many people, including the most prominent health professionals in the country, thought he wouldn’t make it this far in life … but he has.
Lewis has one of the rarest forms of Batten Disease, a terminal condition for which there is currently no cure. Batten Disease has taken away almost all of Lewis’s abilities, but not his amazingly positive attitude to life. According to the evidence available about his illness, his life should have been taken away from us anytime from the age of eight years old, but he is still here fighting on!
Read James’ blog in full on the Personal Health Budget section.