F05. Haemoglobinopathies

Scope

This Clinical Reference Group (CRG) covers Sickle Cell Disease (SCD), Thalassaemia and other very rare anaemias requiring lifelong transfusion and chelation. Haemoglobinopathies are complex disorders which although often grouped together and managed by the same specialist team, have distinct clinical manifestations and treatments.

Membership

  • Dr. Jo Howard, Chair
  • Dr. Wale Atoyebi, Clinical Member
  • Dr. Banu Kaya, Clinical Member
  • Dr. Sarah Nicolle, Clinical Member
  • Dr. Elizabeth Rhodes, Clinical Member
  • Dr. Paul Telfer, Clinical Member
  • Dr. Josh Wright, Clinical Member
  • Dr. Subarna Chakravorty, Clinical Member
  • Dr. Annette Wood, PHE Lead
  • Elizabeth Davies, Pharmacy Lead
  • Funmi Dasaolu, Patient & Public Voice Representative
  • Carol Burt, Patient & Public Voice Representative
  • Dr. Baba Inusa, NHP Affiliate Member
  • Dr. Farrukh Shah, NHR Affiliate Member
  • Sara Trompeter, NHSBT Affiliate Member
  • Sharon Hodgson, Lead Commissioner

Products

A key part of the CRG’s work is the delivery of the ‘products’ of commissioning. These are the tools used by the 10 Hub Commissioning Teams to contract services on an annual basis.

Specialised Haemoglobinopathy Services

Service Specifications

Service specifications are important in clearly defining the standards of care expected from organisations funded by NHS England to provide specialised care. The specifications have been developed by specialised clinicians, commissioners, expert patients and public health representatives to describe both core and developmental service standards. Core standards are those that all funded providers should be able to demonstrate, with developmental standards being those which may require further changes in practice over time to provide excellence in the field.

The following service specifications fall within the scope of this CRG:

Clinical Commissioning polices