F05. Haemoglobinopathies

Scope

This Clinical Reference Group (CRG) covers Sickle Cell Disease (SCD), Thalassaemia and other very rare anaemias requiring lifelong transfusion and chelation. Haemoglobinopathies are complex disorders which although often grouped together and managed by the same specialist team, have distinct clinical manifestations and treatments.

Membership

Sharon Hodgson, Lead Commissioner
Dr Jo Howard, Chair
Wale Atoyebi, Clinical Member
Banu Kaya, Clinical Member
Catherine Sarah Nicolle, Clinical Member
Elizabeth Rhodes, Clinical Member
Paul Telfer, Clinical Member
Sara Trompeter, Clinical Member
Josh Wright, Clinical Member
Baba Inusa, Clinical Member
Farrukh Shah, Clinical Member
Simon Cheesman, Clinical Member
Subarna Chakravorty, Clinical Member
Annette Wood, Public Health Lead
Funmi Dasaolu, Patient & Public Voice Representative
Carol Burt, Patient & Public Voice Representative

Products

A key part of the CRG’s work is the delivery of the ‘products’ of commissioning. These are the tools used by the 10 Hub Commissioning Teams to contract services on an annual basis.

Specialised Haemoglobinopathy Services

Service Specifications

Service specifications are important in clearly defining the standards of care expected from organisations funded by NHS England to provide specialised care. The specifications have been developed by specialised clinicians, commissioners, expert patients and public health representatives to describe both core and developmental service standards. Core standards are those that all funded providers should be able to demonstrate, with developmental standards being those which may require further changes in practice over time to provide excellence in the field.

The following service specifications fall within the scope of this CRG:

Clinical Commissioning polices