This Clinical Reference Group (CRG) covers specialised endocrinology services. Endocrine glands secrete hormones directly into the blood stream. The main endocrine glands are the pituitary gland, thyroid gland, pancreas, ovaries, testes and adrenal glands. Many endocrine conditions may be treated in local hospitals, but patients with complex or co-morbid conditions may require referral to specialist centres for consultant opinion or further management.
This Clinical Reference Group (CRG) covers:
- the management of people with specialist thyroid conditions including thyroid malignancies and complex parathyroid conditions in pregnancy, hypoparathyroidism and complex problems of calcium/phosphate handling
- services for people with pituitary/hypothalamic conditions including adrenal insufficiency and complex pituitary conditions in pregnancy
- services for people with neuro-endocrine tumours
- services for people with defined Familial Endocrine Conditions which need genetic markers
- services for people with defined reproductive conditions including intersexual states.
Chair: Professor Neil Gittoes, Consultant Endocrinologist and Honorary Professor at the Centre for Endocrinology, Diabetes and Metabolism (CEDAM), University Hospitals Birmingham, Queen Elizabeth and University of Birmingham.
Deputy Chair: John Newell-Price
Dr Simon Aylwin, clinical member
Dr Helena Gleeson, clinical member
Dr Tristan Richardson, clinical member
Prof John Newell-Price, clinical member
Dr Miles Levy, clinical member
Dr Daniel Flanagan, clinical member
Ian Wren, lead commissioner
Phillip Newland Jones, pharmacy lead
Angeline Walker, Public Health England lead
Sara Spain, Patient and Public Voice representative
Vicky Ruszala, Pharmacy Lead
Mahmoud Sanii, Patient and Public Voice representative
Katherine Whites, Patient and Public Voice representative
John Wass (Endocrinology GIRFT)
Rob Gregory (Associate of the British Clinical Diabetologists)
Peter Clayton (Royal College of Paediatrics and Child Health)
Prof Steve Ball (Society of Endocrinology)
A key part of the CRG’s work is the delivery of the ‘products’ of commissioning. These are the tools used by the 10 Hub Commissioning Teams to contract services on an annual basis.
Service specifications are important in clearly defining the standards of care expected from organisations funded by NHS England to provide specialised care. The specifications have been developed by specialised clinicians, commissioners, expert patients and public health representatives to describe both core and developmental service standards. Core standards are those that all funded providers should be able to demonstrate, with developmental standards being those which may require further changes in practice over time to provide excellence in the field.
The following service specifications fall within the scope of this CRG:
- Specialised Endocrinology Service (Adult)
- Insulin-resistant diabetes service (All Ages)
- Islet Transplantation Service (Adults)
- Pancreas Transplantation Service (Adult)
- Metreleptin for congenital leptin deficiency (all ages) (effective from 1 April 2019)
- Teriparatide for osteoporosis in men (adults)
- Lomitapide for homozygous familial hypercholesterolemia
- Cinacalcet for complex primary hyperparathyroidism
- Pasireotide: an injectable medical therapy for the treatment of Cushing’s disease
- Pegvisomant for acromegaly as a third-line treatment (adults)
- Tolvaptan for hyponatraemia secondary to the Syndrome of Inappropriate Antidiuretic Hormona (SIADH) in patients requiring cancer chemotherapy
Not routinely commissioned: