Renal services deal with patients with kidney failure. Each year, in England, approximately 5,500 people start treatment for kidney failure and there are currently around 43,000 people receiving treatment for kidney failure. Around 4 in 10 people are treated by circulating their blood through a machine which cleans it of toxins (haemodialysis). This can be done either in hospital or at home. About 1 in 10 people are treated using the thin membrane that lines the abdominal cavity (the peritoneum) as a filter. This is called peritoneal dialysis. Approximately half of these patients are treated by having a kidney transplant.
This Clinical Reference Group (CRG) covers:
- services for people with acute kidney injury
- the preparation for and delivery of dialysis, whether in a centre or at home
- people who undergo kidney transplantation.
Chair: Dr Sandip Mitra, Manchester University Hospitals Foundation Trust Professor of Nephrology and University of Manchester National Clinical Chair for Renal Services
Ian Wren, Lead Commissioner
Dr Nitin Kolhe, Clinical member
Dr Richard Baines, Clinical member
Dr Ravindra Rajakariar, Clinical member
Dr Phil Mason, Clinical member
Mr Adam Barlow, Clinical member
Peter Andrews, Clinical member
Andrea Devaney & Clare Morlidge, pharmacy leads
Catherine Croucher, Public Health England lead
Nick Palmer, Patient and Public Voice representative
Maddy Warren, Patient and Public Voice representative
Paul Cockwell (Renal Association)
Lisa Burnapp (NHSBT/BTS)
Sharlene Greenwood (British Renal Society)
Will McKane (Renal GIRFT)
Guide to renal transplantation services
NHS England has produced a summary of renal transplantation services and how they are commissioned.
A key part of the CRG’s work is the delivery of the ‘products’ of commissioning. These are the tools used by the 10 Hub Commissioning Teams to contract services on an annual basis.
Service specifications are important in clearly defining the standards of care expected from organisations funded by NHS England to provide specialised care. The specifications have been developed by specialised clinicians, commissioners, expert patients and public health representatives to describe both core and developmental service standards. Core standards are those that all funded providers should be able to demonstrate, with developmental standards being those which may require further changes in practice over time to provide excellence in the field.
The following service specifications fall within the scope of this CRG:
- Acute Kidney Injury (Adult)
- Adult kidney transplant service
- Atypical haemolytic uraemic syndrome (aHUS) (all ages)
- Centre Haemodialysis ICHD
- Cystinosis diagnosis and co-ordination of management (all ages)
- Encapsulating peritoneal sclerosis treatment service (adults)
- Ex-vivo partial nephrectomy service (adults)
- Haemodialysis to treat established renal failure in the home
- Haemodialysis delivering only Dialysis Away from Base (DAFB)
- Peritoneal Dialysis to treat Established Renal Failure
- Renal Assessment (Adult)
A commissioning policy is a document that defines access to a service for a particular group of patients. A NICE Technology Appraisal Guideline on the same topic will replace, or be incorporated into, a commissioning policy as appropriate. These are important documents that are developed to ensure consistency in access to treatments nationwide.
The following policies fall within the scope of this CRG:
- Reimbursement of expenses for living donors
- Eculizumab in the treatment of recurrence of C3 glomerulopathy post-kidney transplant
- Dialysis Away From Base
- Dialysis Away From Base – Frequently asked questions
- Mercaptamine hydrochloride viscous eyedrops for corneal cystine deposits in people aged 2 years and over
Not routinely commissioned:
- Eculizumab for the treatment of refractory antibody mediated rejection post kidney transplant
- Bortezomib for the treatment of refractory antibody mediated rejection post kidney transplant
- Rituximab for the treatment of Idiopathic membraneous nephropathy in adults
- Rituximab for the treatment of refractory focal segmental glomerulosclerosis in the native kidney in adults
Policy statements are brief documents that define the current commissioning position to support service contracting.