The neuroscience Clinical Reference Group (CRG) covers specialised neuroscience services and specialised adult neurosurgery.
Chair: Professor Adrian Williams, Consultant Neurologist, University Hospitals Birmingham NHS Foundation Trust.
Philip White, North
Paul Eldridge, North
Stephen Sturman, Midlands & East
Rodney Laing, Midlands & East
Michael Dilley, London
Kevin O’Neill, London
Paul Grundy, South
Andria Merrison, South
Shelley Jones, Lead Pharmacist
Sarah Vibert, Patient & Public Voice
Genevieve Edwards, Patient & Public Voice
Nicholas Bungay, Patient & Public Voice
Katharine McIntosh, (Maternity cover) Patient & Public Voice
Jacquie Kemp, Lead Commissioner, email@example.com
A key part of the CRG’s work is the delivery of the ‘products’ of commissioning. These are the tools used by the 10 Hub Commissioning Teams to contract services on an annual basis.
Service specifications are important in clearly defining the standards of care expected from organisations funded by NHS England to provide specialised care. The specifications have been developed by specialised clinicians, commissioners, expert patients and public health representatives to describe both core and developmental service standards. Core standards are those that all funded providers should be able to demonstrate, with developmental standards being those which may require further changes in practice over time to provide excellence in the field.
The following service specifications fall within the scope of this CRG:
- A Diagnostic service for rare neuromuscular disorders (All Ages)
- Neurointerventional Services for Acute Ischaemic & Haemorrhagic Stroke
- Neurosurgery (Adult)
- Neurosciences Specialised Neurology (Adult)
- Neuromyelitis optica service (adults and adolescents)
A commissioning policy is a document that defines access to a service for a particular group of patients. A NICE Technology Appraisal Guideline on the same topic will replace, or be incorporated into, a commissioning policy as appropriate. These are important documents that are developed to ensure consistency in access to treatments nationwide.
The following policies fall within the scope of this CRG:
- Deep Brain Stimulation (DBS) In Movement Disorders
- Disease Modifying Therapies for Patients with Multiple Sclerosis (MS)
- Intrathecal Baclofen (ITB)
- Levodopa-Carbidopa Intestinal Gel (LCIG)
- Mechanical thrombectomy for acute ischaemic stroke
- Vagal Nerve Stimulation for Epilepsy
Not routinely commissioned:
- Amifampridine phosphate for the treatment of Lambert-Easton Myasthenic Syndrome
- Deep Brain Stimulation for Refractory Epilepsy (all ages)
- Fampridine for multiple sclerosis
- Rituximab for chronic inflammatory demyelinating polyradiculoneuropathy (CIDP), multifocal motor neuropathy (MMN), vasculitis of the peripheral nervous system & IgM paraprotein-associated demyelinating neuropathy (adults)
Policy statements are brief documents that define the current commissioning position to support service contracting.
The following policy statements fall within the scope of this CRG:
- Amifampridine (Firdapse) for Lambert Easton Myasthenic Syndrome (LEMS)
- Cerebellar Stimulator Implants
- Deep Brain Stimulation (DBS) for Indications Except Movement Disorders
- Fampridine for Multiple Sclerosis (MS)
- Flow Diverting Devices for Intracranial Aneurysms
- Flow diverter / Pipeline Embolization Device (PED) for intracranial aneurysms
- Natalizumab-induced Progressive Multifocal Leukoencephalopathy in relation to Immune Reconstitution Inflammatory Syndrome in Multiple Sclerosis (all ages)