E03. Paediatric Medicine
Scope
This CRG covers the more specialised elements of children’s care across a range of medical specialties, including highly specialised services, renal services, diabetes, rheumatology, immunology, endocrinology, gastroenterology, haematology, respiratory, palliative care and gender identity development services.
Membership
- Chair: Dr Sue Protheroe, Consultant Paediatric Gastroenterologist at Birmingham Women’s and Children’s Hospital
- Dr Ronny Cheung, Clinical Member
- Professor Peter Clayton, Clinical Member
- Dr Sarah Mitchell, Clinical Member
- Dr Carol Inward, Clinical Member
- Professor Saul Faust, Clinical Member
- Dr Astor Rodrigues, Clinical Member
- Dr Clarissa Pilkington, Clinical Member
- Stephen Tomlin, Clinical Member
- Dr Jacqui Lindo, Public Health Lead
- Bernie Stocks, HSS Commissioning Lead
- Heather Weaver, Pharmacy Lead
- Sally Vincent, PPV Member
- Gabrielle Mathews, PPV Member
- Heidi Unwin, PPV Member
- Dr Maya Desai, Affiliate Member
- Mike McKean, Affiliate Member
- Katie Jones, Lead Contact
Products
A key part of the CRG’s work is the delivery of the ‘products’ of commissioning. These are the tools used by the 10 Hub Commissioning Teams to contract services on an annual basis.
Service Specifications
Service specifications are important in clearly defining the standards of care expected from organisations funded by NHS England to provide specialised care. The specifications have been developed by specialised clinicians, commissioners, expert patients and public health representatives to describe both core and developmental service standards. Core standards are those that all funded providers should be able to demonstrate, with developmental standards being those which may require further changes in practice over time to provide excellence in the field.
The following service specifications fall within the scope of this CRG:
- Airborne high consequence infectious diseases service specification (children)
- Liver Transplantation Service (Children)
- Intestinal pseudo-obstructive disorders service (Children)
- Small bowel transplantation service (children and adults)
- Specialist Liver Disease Service (Children)
- Paediatric Medicine: Renal
- Paediatric Medicine: Rheumatology
- Paediatric Medicine: Gastroenterology,Hepatology and Nutrition
- Paediatric Medicine: Immunology and Infectious Diseases
- Paediatric Medicine: Endocrinology and Diabetes
- Paediatric Medicine; Haematology
- Paediatric Medicine: Respiratory
- Paediatric Medicine: Palliative Care
- Paediatric Medicine: Specialised Allergy Services
- Complex childhood osteogenesis imperfecta service
- Diagnostic service for primary dyskinesia (adults and children)
- Gender identity development service for children and adolescents
- Primary Ciliary Dyskinesia (PCD) Diagnosis and Management Service (Children)
- Bardet Biedl syndrome service (adults and children)
- Congenital Hyperinsulinism Service (Children)
- Wolfram Syndrome Service (Adults and Children)
- Alström syndrome service (All Ages)
Policies
A commissioning policy is a document that defines access to a service for a particular group of patients. A NICE Technology Appraisal Guideline on the same topic will replace, or be incorporated into, a commissioning policy as appropriate. These are important documents that are developed to ensure consistency in access to treatments nationwide.
The following policies fall within the scope of this CRG:
- Anakinra for haemophagocytic lymphohistiocytosis for adults and children in all ages
- Dornase alfa inhaled theray for primary ciliary dyskinesia (all ages)
- Temperature controlled laminar airflow device for persistent allergic asthma
- Mecasermin for treatment of growth failure
- Rituximab for the treatment of relapsing steroid sensitive nephrotic syndrome
- Rituximab for the treatment of Steroid Resistant Nephrotic Syndrome in paediatric patients
- Prescribing of cross-sex hormones as part of the Gender Identity Development Service for Children and Adolescents
Policy statements
Policy statements are brief documents that define the current commissioning position to support service contracting.
The following policy statements fall within the scope of this CRG: