This CRG covers the more specialised elements of children’s care across a range of medical specialities, including highly specialised services, renal services, diabetes, rheumatology, immunology, endocrinology, gastroenterology, haemotology, respiratory, palliative care and gender identity development services.
Chair: Sue Protheroe, Consultant Paediatric Gastroenterologist at Birmingham Children’s Hospital.
Peter Clayton, North
Fiona Campbell, North
Maya Desai, Midlands & East
Clarissa Pilkington, London
Susan Leech, London
Saul Faust, South
Carol Inward, South
Stephen Tomlin, Lead Pharmacist
Nick Posford, Patient & Public Voice
Sally Vincent, Patient & Public Voice
Lynnette Ametewee, Lead Commissioner, firstname.lastname@example.org
A key part of the CRG’s work is the delivery of the ‘products’ of commissioning. These are the tools used by the 10 Hub Commissioning Teams to contract services on an annual basis.
Service specifications are important in clearly defining the standards of care expected from organisations funded by NHS England to provide specialised care. The specifications have been developed by specialised clinicians, commissioners, expert patients and public health representatives to describe both core and developmental service standards. Core standards are those that all funded providers should be able to demonstrate, with developmental standards being those which may require further changes in practice over time to provide excellence in the field.
The following service specifications fall within the scope of this CRG:
- Airborne high consequence infectious diseases service specification (children)
- Liver Transplantation Service (Children)
- Intestinal pseudo-obstructive disorders service (Children)
- Small bowel transplantation service (all ages) (effective until 31 March 2019)
- Small bowel transplantation service (children and adults) (effective from 1 April 2019)
- Specialist Liver Disease Service (Children)
- Paediatric Medicine: Renal
- Paediatric Medicine: Rheumatology
- Paediatric Medicine: Gastroenterology,Hepatology and Nutrition
- Paediatric Medicine: Immunology and Infectious Diseases
- Paediatric Medicine: Endocrinology and Diabetes
- Paediatric Medicine; Haematology
- Paediatric Medicine: Respiratory
- Paediatric Medicine: Palliative Care
- Paediatric Medicine: Specialised Allergy Services
- Complex childhood osteogenesis imperfecta service
- Diagnostic service for primary dyskinesia (adults and children)
- Gender identity development service for children and adolescents
- Primary Ciliary Dyskinesia (PCD) Diagnosis and Management Service (Children)
- Bardet Biedl syndrome service (adults and children)
- Congenital Hyperinsulinism Service (Children)
- Wolfram Syndrome Service (Adults and Children)
- Alström syndrome service (All Ages)
A commissioning policy is a document that defines access to a service for a particular group of patients. A NICE Technology Appraisal Guideline on the same topic will replace, or be incorporated into, a commissioning policy as appropriate. These are important documents that are developed to ensure consistency in access to treatments nationwide.
The following policies fall within the scope of this CRG:
- Dornase alfa inhaled theray for primary ciliary dyskinesia (all ages)
- Temperature controlled laminar airflow device for persistent allergic asthma
- Mecasermin for treatment of growth failure
- Rituximab for the treatment of relapsing steroid sensitive nephrotic syndrome
- Rituximab for the treatment of Steroid Resistant Nephrotic Syndrome in paediatric patients
- Prescribing of cross-sex hormones as part of the Gender Identity Development Service for Children and Adolescents
Policy statements are brief documents that define the current commissioning position to support service contracting.
The following policy statements fall within the scope of this CRG: