Paediatric Critical Care and Specialised Surgery in Children Review

NHS England launched a national review into paediatric critical care and specialised surgery in children in October 2016. The review has specifically considered paediatric critical care, specialised surgery in children, paediatric critical care transport and extracorporeal membrane oxygenation (ECMO), as well as related areas, such as the care of children with long-term ventilation needs.

The review aims to ensure that services are sustainable and fit for the future, and to reduce any variation in the care being provided. Although there are distinct issues to address, there are also some common challenges and areas of overlap between the elements of the review.

Throughout the review, there has been engagement with a wide range of audiences, firstly to understand the issues and the case for change, and then to test out thinking on what a new model of care could look like, ensuring that key issues and concerns were captured at an early stage. Engagement has continued as the proposals are developed, and is a crucial part of the review. The engagement process has been run by undertaking a series of events, webinars and site visits, and by participating in forums and clinical meetings.

The engagement has included children and young people, parents and carers, professional bodies, the third sector, providers, commissioners and a wide range of clinical staff. The review team has also engaged with other work programmes being carried out by NHS England, and with existing Operational Delivery Networks (ODNs) to inform the proposed new model of networked care.

To receive ongoing updates, please register as a stakeholder for the Paediatric Intensive Care and / or Specialised Surgery in Children Clinical Reference Groups (CRG).

An Expert Stakeholder Panel has been set up to support and give advice to the review. The group meets regularly and more information about the purpose of this group and its membership is available in the terms of reference.

Membership of the group includes:

  • Paediatric Intensive Care Society
  • Royal College of Surgeons
  • Academy of Medical Royal Colleges
  • Children’s Hospital Alliance
  • Paediatric Intensive Care Society: Acute Transport Group
  • Royal College of Paediatrics and Child Health
  • National Clinical Directors for Children & Young People, and Heart Disease
  • Faculty of Intensive Care Medicine
  • Royal College of Anaesthetists
  • Royal College of Nursing
  • Neonatal, Paediatric Intensive Care, and Specialised Surgery in Children Clinical Reference Groups
  • Paediatric Intensive Care Audit Network
  • National Parent Carer Forum
  • Congenital Committee, Society for Cardiothoracic Surgery in Great Britain and Ireland
  • Association of Paediatric Anaesthetists of Great Britain and Ireland

In addition we have a Communications and Engagement Advisory Group made up of charities and patient groups representing families that rely on critical care who advise on our approach to involving people. If your group would like to be interested in joining our regular calls, please get in touch with the team at england.paedsreview@nhs.net.

The national team is now working closely with regions to consider how a networked approach could work at a local level, and is working particularly closely with two co-production test sites in South East England and Yorkshire and Humber. The outputs from this work will be shared and used to inform work taking place across the country. We are also continuing to engage with professional bodies and their members.

Find out more the developing South East Paediatric Network by reading a blog from the Network Manager, Harriet Ward.

You can also read some of the original blogs from our clinical leads, Dr Peter Wilson and Dr Gale Pearson setting out why a review into these services was undertaken.

Further detail on the review can be found in our frequently asked questions.