NHS England and NHS Improvement’s celebrating participation in healthcare grants have been awarded to the following organisations to showcase good practice approaches developed to involve people in healthcare.
Peer Power Youth is a ‘youth-specific’ Patient Public Voice provider for Heath and Justice. They are distinctive in involving young people in decision making at all levels of the organisation. Their goals and mission were decided together with young people, based on what they said would make a difference to them. All their work is peer-led and designed in partnership with young people with lived experience of health, social care and criminal justice systems.
Young Peer Leaders train their peers to use their experiences of injustice and inequality to identify their resilience, strengths and assets to overcome them and live to their full potential. Since 2016, Peer Power Youth have been supporting young people to transform services enabling their involvement in a full commissioning cycle, service specification design and procurement of healthcare services.
With the grant money, Peer Power Youth will produce a film to tell the story of the Peer Power Experts and to showcase their journey of involvement and influencing health services.
darts is a participatory arts charity that collaborates with participants and artists to design and deliver creative programmes for people living, working and learning in Doncaster. The organisation works closely with key stakeholders from Doncaster’s health and culture sectors who are passionate about the role the arts can play in preventing crisis and maintaining good health and wellbeing.
Their project, Creative Directions, offers regular, creative activity to adults with a spectrum of diagnosed and undiagnosed mild, moderate and severe mental health issues, as well as those feeling socially isolated. It was co-produced with participants and health partners to ensure a person-centred approach, enabling people to manage daily challenges and reducing their reliance on health services by providing alternative local services in the community.
With the grant money, darts have created a video to share the story of Creative Directions and to showcase how people were involved in the development of this recovery model.
Mojatu Foundation is a leading organisation in the global campaign to end female genital mutilation (FGM). They lead a team of survivors, FGM steering group, community sport groups and support networks within the NHS and the Black and Minority Ethnic (BME) communities to ensure survivors have appropriate referral pathways to receive mental health, maternal health and other support through the NHS, as well as in their own communities. They work with the NHS to guarantee FGM survivors’ problems are understood and dealt with sensitively.
The work Mojatu Foundation has done in this area led to Nottingham becoming the first city in the UK to declare itself a zero-tolerance city for FGM. With the grant money, Mojatu Foundation will use a digital storytelling approach to showcase the role of FGM survivors and campaigners in improving health services, to highlight the importance of working directly with people and communities to understand the issues they face, and to improve the quality of patient care and health outcomes.
A team of 22 Experts by Experience with a learning disability and/or autism from 5 different organisations across Cumbria and the North East came together with representatives from Northern Cancer Alliance and NHS England to co-design and deliver a peer educator cancer awareness course called ‘Be Cancer Aware – Time to all talk about cancer’. This project provides the opportunity for people with a learning disability and/or autism to find out, learn, talk and share their experiences about different aspects of cancer.
With the grant money, the Be Cancer Aware partnership will create a video to highlight the importance of co-production and the benefits of working alongside healthcare professionals including removing barriers that have prevented people from taking up cancer screenings and annual health checks as well as supporting staff to better understand and meet people’s health needs.
The Sickle Cell Society (SCS) supports and represents people affected by Sickle Cell Disease (SCD) to improve their overall quality of life. SCD affects approximately 15,000 people in the UK, with approximately 270 children born annually and is most common (although not exclusively) amongst families of Black African/Caribbean descent, and populations from India, Middle East, Mediterranean, and Central/South America.
With the grant money, the SCS will create a video to tell the story of their young people’s Peer Mentoring Programme. The programme is led and run by young people with SCD who support other young people affected by SCD. During 2017/2018, over 45 young people across Hackney received support which resulted in positive changes including reduction of A&E attendances and in-patient episodes. The video will showcase the success of the Peer Mentoring Programme, demonstrating the power and importance of co-production in preventing ill health.
The Care Forum listens to the opinions, views, needs and aspirations of local people to improve service delivery and reduce health inequalities.
During 2016-2018, they carried out a ‘Quality Checkers’ project, in partnership with The Hive Avon to enable people with a learning disability and/or autism to quality check primary, community and secondary health services. As a result, a number of recommendations were made for service improvement in areas such as signage, physical accessibility, compliance with the Accessible Information Standard and staff awareness.
With the 2019 grant, The Care Forum and The Hive Avon have produced a video to showcase how they involved people with a learning disability and/or autism to influence the delivery of health services, the impact involvement had on services and the health outcomes achieved.
WE WILL are a group of young people leading change in youth mental health across Cumbria and beyond. The group are campaigning for commitments to improve youth mental health in their schools, communities, families and wider circles across West Cumbria. WE WILL members are aged 14 – 19, are based in Ewanrigg, Maryport and are supported by the Ewanrigg Local Trust.
The group spent 18 months interviewing a range of people within their community and identified a gap in youth mental health provision and the impact it was having on family and friends. They are collaborating with health trusts, schools and community groups to improve youth mental health services. They have supported more than 300 people in their area to become trained in Youth Mental Health First Aid. They have made highly successful films that communicate vital youth mental health messages and regularly present to large audiences.
With the grant money, Ewanrigg Local Trust has created a video to showcase how young people were involved in the development of this project and what impact it had on services, and to share what commitments are being made to improve youth mental health in West Cumbria.
Carers in Hertfordshire has co-production at the heart of their work. In their young carers service, they have supported a Young Carers Council for 20 years enabling young carers to be involved in decision-making across health, education and social care.
Their project, ‘Youth Exec’, brought together a small group of young carers from the Council. The Youth Exec has toured several health organisations across Hertfordshire, raising awareness of young carers and talking to senior professionals about improvements they could make for young carers in their area of the NHS.
With the grant, Carers in Hertfordshire has produced a video to share the story of the Youth Exec project and to showcase the benefits of involving young carers and working across the health sector in partnership with Carers in Hertfordshire, and to celebrate the achievements and improvements made.
The Hangleton and Knoll Project (HKP) is a Community Development and Youthwork organisation that works in partnership with local residents, diverse community groups and service providers to improve citizens’ quality of life and facilitate positive changes in the West of Brighton and Hove. HKP set up the West Area Health Forum in partnership with local citizens. The Forum aims to prevent and address local health inequalities, support community solutions to primary care and community health issues and give voice to the many communities of the area.
With the grant money, HKP created an animated video to tell the story of the West Area Health Forum and to share how they involved patients of all ages and ethnicities in the design and development of NHS health services. The video highlights the importance of partnership working between people and communities, the voluntary sector and local health and social care providers to develop innovative solutions and identify potential service improvements.
Skills for People employs people with a learning disability and/or autism and family carers of disabled children to co-produce and deliver new initiatives enabling people to be in control of their own lives and to improve their health and wellbeing through the development of training.
With the grant, Skills for People have created a video to tell the story of their Positive Behaviour Support training programme which was co-produced with parents of children with a learning disability and/or autism. The programme brought together parents of children with a learning disability and/or autism whose behaviour could be seen as challenging. Through a series of workshops, they learnt how to better understand and support their children using Positive Behaviour Support. More than 20 parents have participated so far, with 100 more to be trained.