The Parental View of Kidney Care

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This guide was created by Ipsos Mori for NHS Kidney Care to help clinicians support parents and families of patients with kidney disease. It is based on ethnographic interviews and follow-up interviews and provides advice and recommendations for HCPs on the types of information and support parents and families would find helpful.

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Summary

This ethnographic study explores the lives of four parents of young adults with kidney disease. The report explores the impact of kidney disease from the point of view of parents, and looks at the intricacies of their relationships with young adults. It explores ‘letting go’, the challenges faced during the transition to adult care, the impact kidney disease has on young adults and their families, their expectations of health care professionals and the parents’ thoughts on their families future.