Involving people in health and care guidance

Patient and public participation in commissioning health and care: statutory guidance for CCGs and NHS England and Involving people in their own health and care: statutory guidance for CCGs and NHS England set out the context, benefits and principles of involving people in health and care, the relevant legal duties and key actions for CCGs and NHS England.

The two sets of guidance, and a wealth of web based resources and best practice, together supersede the original ‘Transforming Participation in Health and Care’ guidance, which was published in 2013.

In response to user feedback, elements of the original guidance have been retained and new features introduced, including a greater focus on people with the greatest health needs, and information on the practicalities of involvement.

The links between individual and collective involvement in health are clear; people who have advanced knowledge, skills and confidence to manage their own health are more likely to get involved at a group/community level in having a say about health and health services. Equally, those who have been involved in the commissioning process (planning, buying and monitoring) health services are more likely to be informed about health and health services; they will therefore be better placed to manage their own health and be involved about decisions relating to their care and treatment.

Voluntary community and social enterprise (VCSE) partners are vital in connecting CCGs and NHS England to people and communities. They can support people to be involved in their own health and care and at a community level, particularly those who experience the poorest health outcomes.

On publication of the guidance, Jane Cummings, Chief Nursing Officer, NHS England, said:
“I welcome the refreshed guidance on involvement and the associated resources in taking us a step closer to the vision expressed in the Five Year Forward View of ‘a new relationship with people and communities’.  As we develop and implement Sustainability and Transformation Plans (STPs) for health and care, it is critical that we involve the people who need and use services in shaping their future, and in supporting people to be as healthy as possible.”

Each set of guidance has an accompanying equality and health inequalities analysis, including useful resources to help engage people who may experience barriers to participation.

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