NHS England’s celebrating participation in healthcare grants have been awarded to showcase good practice approaches developed to involve people in healthcare.
Lincolnshire Community and Voluntary Service (LCVS) works with health services to try new ways of working, increase knowledge, develop good practice and demonstrate ways to improve services. The ‘Happy Breathers’ Chronic Obstructive Pulmonary Disease (COPD) project helps participants learn about COPD in a relaxed setting and improves patient outcomes by enabling better self-care. Patients have been involved from the start and their feedback has helped to steer the project. Participants have reported they are less socially isolated, more confident about managing their condition and benefit from peer to peer support. LCVS produced a short video to explain the origins and development of the project, how it has involved people and the impact it had had, along with an accompanying leaflet.
Creative Carers is an organisation run by carers for carers. They have a dedicated carers’ space; a retreat called Haven House. Carers (and their loved ones) help improve health services for the community in different ways e.g. through peer support. Creative Carers developed an interactive online resource and a film to highlight its carer engagement approach. They show how they have worked with the local hospital to involve carers in dementia services. The conversations between carers and the hospital resulted in positive changes for carers and their loved ones with dementia/memory loss when staying in, or visiting, hospital.
First Steps is Derbyshire’s only eating disorder charity established by experts by experience. The charity has a strong user-led ethos and provides support to students with mild/moderate eating difficulties at Nottingham Trent University and The University of Nottingham. Its ‘Eating Disorders in Students Service’ (EDiSS) is the only university based service devoted to supporting students and staff, with or without an eating disorder diagnosis. First Steps used their grant and produced a film and social media campaign to showcase how they involved experts by experience volunteers and service users to provide a range of services to students.
The British Institute of Human Rights (BIHR) supports organisations to use a human rights approach to ensure services are person-centred and accountable. BIHR’s project ‘Care and Support: A human rights approach to advocacy’ enabled people with mental health/capacity issues to have increased control over treatment decisions, and ensured that they are treated with dignity and respect. It worked with advocacy and support groups, people using services, family members and carers to increase knowledge and understanding of how to use human rights to improve services. BIHR has produced a film to share how it engaged people and the project outcomes with patients and services.
Re-Instate works to improve employment opportunities, quality of life and wellbeing for disadvantaged people in the London Borough of Bexley, including people experiencing mental ill health, people with learning disabilities and young people. Its W-RAP project improves patients’ experience in hospital by providing ‘Well-being, Recovery, Activity, Parcels’, admission packs and going home packs. The project has been designed and managed by people experiencing mental ill health. Re-Instate has produced a short film to share the W-RAP story, demonstrating the power of co-production on service delivery and patient participation. The film has been written, produced and edited by people experiencing mental ill health.
The Aldingbourne Trust has been working in partnership with Sussex Partnership NHS Foundation Trust (SPFT) and Brighton and Sussex University Hospitals NHS Trust (BSUH) on the ‘Springwell Project’. It has brought together people with a learning disability (PWLD) and complex needs to understand the barriers to their involvement and engagement in their own care, and what helps in their specialist healthcare. As a result of this work the project has developed four standards for good engagement that PWLD should expect from services. The standards are used to engage PWLD in the planning of their healthcare alongside referral and assessment support tools. Team Springwell used their grant and made a film which shows how it engaged service users in the assessment of their health services.
Healthwatch Oxfordshire listens to the views and experiences of people using local health and social care services. It has worked with the Luther Street Medical Centre in Oxfordshire to support the development of a sustainable Patient Participation Group (PPG) for the practice. Located in Central Oxford, the surgery is run by Oxford Health Foundation NHS Trust and provides primary health care services for adults experiencing homelessness. The work to develop the PPG involved research in local hostels to see whether patients wanted a group and the co-design of the PPG structure so that it met patients’ needs. The PPG is now an integral part of the surgery which enables patients experiencing homelessness to safely provide feedback and share their experience to improve services. In this video Healthwatch Oxfordshire show how they successfully engaged people through a short film and accompanying leaflets.
Youth Access is the national membership organisation for a network of 180 Youth Information, Advice and Counselling Services (YIACS), which offer young people support on a range of issues in a young person-centred environment. The ‘Altogether Better’ charter was created by young people and sets out criteria for services to ensure that they are putting young service users at the heart of their organisation. Over 240 young people had direct input into the charter, putting their voices and experiences at the front and centre of the project. They were involved through consultation workshops across the country which included a range of marginalised groups.
Youth Access used their grant to create a short animation to tell the story of the charter’s development.