Many health professionals are anxious about assessing young children, and many parents have concerns that they are not able to communicate how worried they are about their sick child. As one parent expressed ‘We seem to be speaking different languages, I think he is sick, and you are telling me to take him home’
The resources below highlight the importance of listening to parents and encouraging the sharing of a common language which is understood by the health professional and the carer. As clinicians we have knowledge of children; parent and carers are the experts of their individual child. By speaking a common language we are able to share our knowledge and expertise to care for the individual sick child.
These two short films have been created for parents, and for staff supporting and empowering parents and families, with the message that the life-time of knowledge parents have of their children may enable them to spot the signs of deterioration in their child first and aims to encourage parents and families to speak up – “If you see something, say something”
- Families as Partners in Achieving Safer Care – By Kath Evans, Head of Patient Experience – Maternity, Newborn, Children and Young People.
- The Effect of Criticism on Parents with Sick Children – By Sarah Neill, Associate Professor in Children’s Nursing, University of Northampton.
- Deterioration in Children with Complex Problems – By Gerri Sefton, Advanced Nurse Practitioner in Paediatric Intensive Care, Lead for PEWS, Alder Hey Children’s NHS Foundation Trust.
Improving the Patient Experience; Children, Parents, and those avoidably Bereaved
- Jasmine Hughes’ story and a letter from Jasmine’s mother, Joanne, outlining her views on what needs to be done for improvement
- Vasili Kalisperas’ story
Managing Everyday Childhood Illness
Parent information sheet aimed at Parents with Children aged 6 months to 5 years and an advisors aid for a parent group session and flash cards, developed by NHS Education Wessex
Listening to You
Developed by Birmingham Children’s Hospital: a guide, poster and planning template to help parents discuss worries or concerns about their child with Health Professionals.
- Talking to staff about your worries: Planning care together
- Parents leaflet
- Listening to you poster
- Staff leaflet
Carer Escalation Policy and parent/carer information
- ‘What to do if you are worried about your child while they are in hospital’ – background
- ‘What to do if you are worried about your child while they are in hospital’ – leaflet