Improving care for people with progressive neurological conditions

People with progressive neurological conditions are experiencing delays in diagnosis and treatment, fragmented and uncoordinated services, limited availability of neurospecialist rehab and reablement and a lack of psycho–social support.

Today, the RightCare Progressive Neurological Conditions Toolkit is published. Developed in collaboration with Parkinson’s UK, MS Society, MS Trust, MND Association, Sue Ryder, MSA Trust and PSP Association, the toolkit supports commissioners to review local pathways in order to identify where potential improvements could be delivered.

If implemented successfully, the toolkit can support people with neurological conditions to be managed closer to home and ensure that people get the right care at the right time.

Dawn Chamberlain, Programme Director – Clinical Improvement at NHS England and NHS Improvement, said: “This is an opportunity to work together to deliver better care closer to home for the thousands of people with progressive neurological conditions in England.

“As they work with staff, patients and stakeholders to implement the NHS Long Term Plan, this toolkit provides the information local health leaders need to understand how to deliver high quality neurology services.”

“Many areas are already providing high quality care in line with best practice, and by supporting others to come to the same standard we can deliver faster, more joined-up and better care for these individuals – supporting them to stay well in their own homes.”

The toolkit provides expert practical advice and guidance on how to address the key challenges when commissioning services and treating people with progressive neurological conditions.

RightCare has a neurology workstream which includes the following resources:

  • Neurological Conditions Focus Pack – provides each CCG in England with the most relevant neurological data, compared to their most similar ten CCGs. Available via local Delivery Partners.
  • Parkinson’s scenario – Using a fictional patient, Sarah along with her husband, this scenario examines a Parkinson’s pathway from the initial first symptoms and diagnosis through to end of life care. It compares a sub-optimal but typical scenario against an ideal pathway.

Health systems can use these resources as a framework for their local improvement discussions.