People with progressive neurological conditions are experiencing delays in diagnosis and treatment, fragmented and uncoordinated services, limited availability of neurospecialist rehab and reablement and a lack of psycho–social support.
This RightCare toolkit will support systems to understand the priorities in care for people living with various progressive neurological conditions.
The toolkit covers the following neurological conditions; multiple sclerosis (MS), motor neurone disease (MND), Parkinson’s and the atypical Parkinsonism’s of multiple system atrophy (MSA), progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD).
It provides the opportunity to assess and benchmark current systems to find opportunities for improvement and has been developed in collaboration with key stakeholders, including:
- Motor Neurone Disease Association
- Multiple Sclerosis Society
- Multiple Sclerosis Trust
- Multiple System Atrophy Trust
- National Institute for Health and Care Excellence
- NHS England Patient Experience Team
- Parkinson’s UK
- PSP Association
- Sue Ryder Foundation
Relevant links to support implementation are included throughout this resource.
Health systems can use this resource as a framework for their local improvement discussions.