Learning Disabilities Mortality Review Programme

NHS England is committed to making sure that people with learning disabilities receive the right care in the right settings, with the right support. This is one of our national priorities. We know that we urgently need to understand and reduce health inequalities amongst this group, which is why, as part of our programme of work we have commissioned the Learning Disabilities Mortality Review (LeDeR) Programme.

The LeDeR programme is the first of its kind in the world and is managed by the Norah Fry Research Centre at the University of Bristol, under contract to the Healthcare Quality Improvement Partnership (HQIP). Funding is provided by NHS England for an initial three year period to June 2018.

People with learning disabilities are four times as likely to die of preventable causes compared with the general population (Disability Rights Commission, 2006). Following the Confidential inquiry into premature deaths of people with learning disabilities (CIPOLD, 2013) one of the key recommendations was the establishment of a national learning disability mortality review  to understand the circumstances leading to a death and whether such deaths could potentially be avoided in the future through improvements to health and care services.

The LeDeR programme was subsequently established and has very clear aims to help reduce these health inequalities. Following successful pilots it is being rolled out across the country with the view to it being embedded by the end of 2017. In NHS England’s south region Wessex and Oxford are currently reviewing deaths of people with learning disabilities

Further details and supporting information on how the programme is being rolled out can be found below.

Further information about the LeDeR programme and its aims and objectives, implementation and family involvement can be found in the Learning Disabilities Mortality Review Programme Annual report 2015-2016.

A host of resources are available on Bristol University’s website including easy read information, details of how to make a notification of a death, latest news and frequently asked questions.

Email: leder-team@bristol.ac.uk | Telephone: 0117 331 0686