The care.data programme – collecting information for the health of the nation

What is care.data?

The care.data programme will bring together securely, health and social care information from different settings in order to see what’s working really well in the NHS – and what we could be doing better. Using data in this way is known as data sharing for purposes beyond direct care, and the information will only be shared if it will benefit patient care.

Collecting and connecting information nationally will help us to;

  • better understand diseases and develop drugs and treatments that can change lives;
  • understand patterns and trends in public health and disease to ensure better quality care is available to everyone;
  • plan services that make the best of limited NHS budgets for the health and wellbeing of everyone;
  • monitor the safety of drugs and treatments; and
  • compare the quality of care provided in different areas of the country.

The Pathfinder stage

GP-led clinical commissioning groups in four parts of the country, known as pathfinder areas, are helping to develop the care.data programme. The programme will be rolled out in participating GP practices in the CCG areas of Blackburn with Darwen, Somerset, West Hampshire and Leeds North, West and South and East. Pathfinder feedback will be used to refine materials for the national roll out.

Latest news

For the very latest on the programme please check out care.data’s latest announcements.

Get involved

NHS England is committed to listening to and working with professionals and patients to gather their feedback on how to implement care.data. To find out what we’ve done in the past or find out about upcoming events, please see care.data events.