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New alliance in social care and health launched
A major new alliance committed to improving care and support for people with long-term conditions has been launched in London today (Friday 21 November).
The Coalition for Collaborative Care (C4CC) has people with long-term health conditions at the heart of its powerful alliance and brings together some of the sector’s most influential national groups and organisations.
With more than 15 million people in the UK living with a long-term condition, the Coalition will champion a system-wide transformation in how they receive and use care and support.
This innovative new partnership will focus on re-framing the relationship between a person with long-term health conditions and the professionals supporting them. This allows the expertise of both to be used most effectively to help the person plan to manage their condition and maximise their well-being.
It will draw strongly on the House of Care developed by the Year of Care Partnerships which highlights what is required to achieve person-centred coordinated care.
There is good evidence to suggest that engaging with people with long-term conditions to co-design their care, leads to better outcomes and more successful independent living. C4CC aims to ensure that professionals and people have the right support, knowledge, skills, power and confidence to achieve this.
The Coalition will also put a strong emphasis on a much more holistic approach in which there is less focus on a person’s condition in isolation and more on the full spectrum of support that is required to enable people to be included in and play active, valued roles within their own communities – an approach developed by Nesta in its People Powered Health programme and often called ‘More than Medicine’.
Martin Routledge, Director of the Coalition for Collaborative Care, said: “We want the Coalition to light the blue touch paper for big changes in how people with long-term conditions and professionals work together to produce better lives.”
Halima Khan, Director of the Innovation Lab at Nesta, one of the Coalition’s partners, said: “We want to create a better deal for people living with long-term health conditions.”
This Coalition needs to be mindful that there are plenty of small voluntary and community organisations offering services to people with long term conditions. These services need to be publicised better because most people are not aware of what is available in their area. Our website http://www.useyourcommunity.com provides a valuable service just referring and signposting people to their local community organisations.
Please tell me what is C4CCs next step towards improving the quality o flife for people with long term conditions.
I represent adults with Asperger’s Syndrome, part of the autistic spectrum, and despite the Autism Act 2009 there still seems to be little understanding and awareness of the complexities of this condition and the courage of those living with it.
My sister in law had an accidentI 14months ago which left her paralysed from the neck downI and needing intensive round the clock care. She is completely reliant on others to help her with every aspect of daily living. Despite being awarded funding for care ( which in itself was a very stressful process) over 6 months ago she remained in hospital and is now in a nursing home while endless negotiations continue regarding her care package. She is frustrated and becoming institutionalised and depressed. It’s affected both hers and my brothers life which has been turned upside down.
The problem seems to be that the Drs recommend a certain amount of care and a lot of noise is made about being independent and participating in community activities but at the end of the day the funding is not forthcoming to achieve this. Eventually she will return home and my brother will most likely become her main carer and she will be isolated from the community with hardly any support.
My son has an abi due to an accident. He lives at home and is totally dependent on assistance to have a life. He is wheelchair bound and has no balance at all. In spite of his doctor and consultant saying he needs 24 hour care he was refused funding by the nhs and social service funding does not pay for 24 hours of care. I am nearly 80 years old and find it increasing difficult to cope. He loves living at home. So much for shared costs!