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The stolen years
In the latest of a series of blogs about #mentalhealth, an NHS England (London) awareness campaign for mental health care across the capital, a Darzi Quality Improvement Fellow from South London and Maudsley NHS Foundation Trust highlights how the effect physical health problems have on mental health and vice versa is one of the biggest challenges the health system and wider community needs to address:
We know that people with some mental illnesses such as psychosis are at risk of dying earlier than those without.
This mortality gap, known as the ‘stolen years’ is estimated at between 10 to 20 years and a large part of it is due to preventable and treatable physical health conditions.
This tells us the services we are providing are not adequate or appropriate to meet their needs. It reveals a shocking inequality within our health system and has been argued by some to reveal something deeply concerning about how we value the lives of those with these conditions.
I have had an opportunity this year to contribute to a London-wide project focused on this issue, run by Healthy London Partnership, which is focused on closing this mortality gap. While I know an inequality between the two exists, I also believe there is reason to be optimistic.
The scope of the programme extends across all health sectors, identifying system changes that can promote better access to physical health promotion, disease prevention and treatment for those with mental illness. The efforts of those who have campaigned tirelessly for years to move this issue up the political agenda have come into fruition and this issue has become a genuine priority.
This issue is also a priority for me personally.
A few years ago I was told that a patient I’d previously looked after had died age 29. His death certificate reported ‘natural causes’. He died of heart problems usually not seen until late in life. He had diabetes, breathing problems worsened by smoking and was very overweight. He also had psychosis, which for him meant constant voices commenting and criticising all he did, mocking him and calling him fat and useless. When he tried to exercise his voices laughed and shouted at him. Despite all this he was warm, kind, charming and funny and never failed to ask how I was when we met.
I find it difficult to accept that losing someone aged 29 from diseases not usually seen until you are much older is ‘natural’. This young man managed more mental distress day in day out than many of us could ever imagine. His story is extreme but the problems it reveals are not unusual.
The impact of physical health problems on mental health and vice versa is one of the biggest challenges the health system and wider community needs to address.
We have known about this issue for a long time but it is complex and many different factors contribute to it. Some mental health conditions, for example, are associated with symptoms that affect motivation and concentration or are treated with medications that can have side effects of weight gain or sedation. A more fundamental difficulty in ensuring that those with mental health problems get appropriate physical health care relates to the way that mental and physical health services have grown up separate from each other.
One size does not fit all and many of the current systems we have to deliver physical health care simply aren’t sufficient or appropriate for those dealing with a difficult mental health problem as well. A ten-minute GP appointment is stressful enough but it becomes even more so when your symptoms affect your concentration, your ability to communicate your thoughts or make you too scared to leave the house.
Funding and availability of professionals or peer support with the time and skill to support in this area is limited. Safe and welcoming community spaces to meet friends; to have the opportunity to exercise at your own pace without judgement and with support from people who understand mental health symptoms are essential but lack clear funding. The gym, for many, is not a welcoming place but if you haven’t exercised in years, have lost your confidence because of illness or feel paranoid and scared in busy places – it is the last place you want to be.
When I first learnt that this young man had died I was angry at a health care system that had so evidently failed him and angry that, ultimately, I had failed him too.
The responsibility lies now with commissioners, providers and communities to work together with those who experience or care for people with mental health problems to rethink, redesign and evaluate how we deliver much needed changes.
From what I have seen the appetite to do this is there. Some of the solutions emerging are hugely exciting. Sporting Recovery in Peckham is an initiative run by two volunteers supporting those with psychosis and other conditions to lose weight, stay out of hospital and take up voluntary and paid work.
These are the sorts of initiatives that change and save lives and it’s something that we should value and support. London can be a difficult city to live in, particularly for those with physical or mental health problems but it is also resourceful and innovative. As my current home I hope that it will soon be a place where the lives of those with mental illness are valued equally as those without.
Excellent article Mary
May I also highlight the importance of ensuring oral/dental health is not overlooked.
We also need to find solutions to prevent tooth loss & dental pain as consequences of poor engagement
Great article. Clinical Health Psychologists have been working to promote integrated care for the past few years. It makes economic as well as humanitarian sense. Contact Faculty for Clinical Health Psychology @BPSOfficial or http://www.bps.org.uk
Dr. Dorothy Frizelle Consultant Clinical Health Psychologist, NHS
Well written heartfelt blog captures the issues professionally and in a sensitive manner, thanks for sharing your experience.
This is a most interesting and informative article.
I have mental health issues as do my siblings.
I hve set up a group in which I have ladies who enjoy gentle exercise and companionship.
They say it is a lifeline .
All these initiatives are concealing the reality that the NHS is now no longer “national” since the removal of the NHS from democratic control as a result of the fundamental changes introduced by the last Conservative led Government in 2013.
Even NHS England (As confirmed by Sir David Nicholson) cannot guarantee that any identified “improvements” are actually implemented by the now “independent” NHS Foundation trusts and Clinical Commissioning Groups – neither can Jeremy Hunt or the Department of Health.
The most immediate necessity is for everyone to realise is that no improvements to the way patients are treated can be guaranteed by anyone since the removal of the NHS from democratic control as a result of the last Government’s changes which took effect in 2013.
The result of the above is that every NHS Foundation Trust is independent, not only from the Government and the Department of Health, but also NHS England (and it’s numerous off shoots) itself.
None of the above can now direct NHS Trusts to behave in a particular way, they can only “ask and/or recommend” but can do nothing effective if the various independent Trusts choose to ignore that request and/or recommendation.
Since 2103 we therefore no longer have a truly “national” Health Service – instead of which we now have 150 or so “independent” separate health services providers, each one of which can make their own decisions about how they provide health services and there is nothing NHS England, Jeremey Hunt or the Department of Health can do to alter this fundamental “legal” reality..
Given the above and the fact that the NHS as a whole is desperately short of money to meet “patient demand” leads to the inescapable conclusion that the billions of pounds each year spent funding the Department of Health, NHS England and it’s numerous and seemingly ever increasing “off shoots” really represents value for money to the tax payer.
Kevin S. Riley Solicitor.