New decision support tool marks important step in care for people living with type 1 diabetes
Type 1 diabetes is going through something of a global revolution – especially with the advancement of technology in aiding self-management.
In recent years, the NHS has made big strides in giving access to new technology to the vast majority of people living with type 1 diabetes. Alongside access to technology, it’s vital that people living with type 1 diabetes feel empowered and have knowledge and understanding about their care options.
Good type 1 diabetes care is formed via three pillars:
- Self-management
- Peer support
- Access to trained professionals
Technology has emerged as an enabler of all three principles, making it even more important about access to relevant pathways, as recommended by the National Institute of Health Care and Excellence (NICE), the independent body who decides about cost-effective use of medicines or in this case, technology.
The new decision support tool has been designed to support people to understand what is available in the NHS, providing a resource to support discussions between someone living with type 1 diabetes and their healthcare professional about appropriate steps in their care, which they are eligible for and come to a shared decision about the person’s care in managing type 1 diabetes.
The aim is to ensure it can be used as a shared decision-making tool which incorporates the latest NICE guidelines (NG17, NG18, TA943), along with the ones which map out access to different parts of technology accessible in the NHS.
One aspect with technology which is always worth bearing in mind is the differential access that may occur based on deprivation or ethnicity. The national and local NHS diabetes teams have worked hard to ensure this gap is minimised, as shown in the pregnancy data sets around use of Continuous Glucose Monitoring (CGM), as well as use of Libre in the overall type 1 diabetes population.
NHS England has type 1 diabetes in children and young people as a key area of the CORE20PLUS5 approach to reduce health inequalities. Even though there have been improvements, as highlighted, access to insulin pumps certainly needs levelling up with continued collective effort to minimise deprivation gaps for children and young people from the most deprived areas and from ethnic minority backgrounds.
The document will be made available in several languages to help with uptake and accessibility. The tools will also help drive further peer support in the world of type 1 diabetes, based on previous work by NHS England.
We hope that this decision support tool will enable further involvement for a person living with type 1 diabetes in their own care through access to life-changing technology. Over the last few years, the greater access to self-management via technology has resulted in the best improvements in glycaemic control since records began and hopefully this tool will continue that progression in the future.