Organisational attendees

• Understanding Patient Data
• Information Commissioner’s Office
• Royal College of General Practitioners
• Association of Medical Research Charities
• NHS England
• NHS Healthwatch
• Patients Association
• British Medical Association
• National Voices
• Office of the National Data Guardian
• UNISON
• Federated Data Platform (FDP) Programme team (NHS England)

Apologies received

• NHS Frimley Integrated Care Board
• Nottingham University Hospitals Trust
• NHS Confederation

Open actions

Meeting minutes

Welcome and introductions 

The chair welcomed all members to the call and noted apologies

Introductions of presenters and members took place, including a new member, providing a brief overview of his role as chair of chief data and analytical officer network and background.

No conflicts/declarations of interests raised.

Minutes and actions from previous meeting 

Previous minutes (April and May) were discussed; some attendees had not received them, so it was agreed to recirculate and allow written comments by the end of the following week.

• Action: FDP Programme Management Office (PMO) to review and amend the minutes as discussed. 

Action items included scheduling future agenda topics such as the strategic value logic model, community mental health offer, and forecasting FDP benefits.

• Action: PMO and Chair to arrange speakers.

NHS Federated Data Platform Programme update

The FDP delivery director and director of data management and transformation, NHS England, provided an update of the programme to the group. 

• 116 acute trusts and 12 non-acute trusts have joined the FDP now.
• 87 acute trusts are either live or in the process of delivery.
• There was a slight slowdown in transition from trusts signing a memorandum of understanding to delivery due to system and organisational pressures, but support continues.
• Product development updates included Cancer 360, and Patient Tracking List, and the Mental health crisis response tool, all receiving significant interest at Confed Expo. Cancer 360 and other products are generating significant interest among trusts.
• Ongoing discussions are focused on the integration with the NHS app for enhanced patient communication.
• A member requested clarification on FDP’s role within the NHS app and its integration with the single patient record (SPR). It was responded to that FDP aims to ensure interoperability and support the app’s capabilities.

FDP Check and Challenge terms of reference 

Final version of the terms of reference approved.

FDP System Co-Ordination Centre (SCC) demo

•  The SCC delivery lead delivered a demonstration of the System Coordination Centre, focusing on demand and capacity management across systems and integration with various health data sets. Action cards are integrated and used for bed pressure management. The tool is currently in 3 pilot sites.
• The group challenged the functionality of tools such as Shrewd and Radar against SCC. A response was given that SCC operates as an alternative rather than an integrative solution.
• A member challenged primary care data inclusion and relevant metrics into the tool. It was clarified that primary care data is not incorporated centrally but can be locally ingested by integrated care boards.
• A member stated that FDP may be suitable for immature trusts but suggested that a different approach is necessary to encourage mature trusts to participate by alleviating associated challenges. Another member concurred and highlighted the significance of minimising the reporting requirements. He advocated for targeting “bread and butter” reporting tasks to encourage uptake among digitally mature trusts.

FDP Single Patient Record (SPR) discussion 

• The director of tech and data integration outlined the vision and progress for the Single Patient Record to the group including objectives around patient ownership, unified records, and support for third-party applications. Clinicians and public engagement, with surveys was referenced indicating positive support.
• A member stressed the need for a clear vision and clinician engagement, suggesting SPR should tackle information fragmentation.
• A member raised practical implementation concerns, citing local system issues. 
• A member advocated for collaboration between clinical and technical teams and advised against technology developed solely by clinicians.
• The director of tech and data integration acknowledged these points, underlining the need for a clear roadmap and ongoing clinician involvement.
• A member noted the importance of focusing on the SPR as a tool for clinicians to deliver care, with the NHS app serving as the front door for patients to access their records.
• A member noted the challenge of integrating multiple systems within NHS trusts, highlighting the need for a comprehensive approach to achieve a single version of the truth.
• Constructive challenge focused on the need for clear scope, practical delivery, and ensuring the SPR is both clinician and patient-led.
• The meeting collectively acknowledged the need for further clarity on how SPR, FDP, and other data initiatives fit together.

Any other business and close 

• A member confirmed the publication of FDP data protection impact assessments.
• There was discussion regarding the August meeting and potential agenda items.

Actions 

• Review of minutes – members to provide feedback on April minutes.
• May minutes – PMO to circulate May minutes for review, with comments due by the end of next week.
• NHS website check and challenge issue – PMO to confirm resolution of check and challenge website issue.
• Strategic value logic model – FDP team to reschedule this item for a future meeting.
• Population health management tool – FDP team to report at the August meeting.
• July/August meeting attendance – attendees to confirm their availability. 

Next meeting 

Scheduled for 18 July 2025, to be chaired by a deputy in the chair’s absence.