Health and Social Care Data Public Panel – minutes and action notes: 13 March 2025

Date: 13 March 2025
Time: 9.30 to 11.15am
Location: MS Teams

Agenda

Time

Agenda item

Owner

09:30

Introductions

Chair

09:30

Review of previous minutes and declaration of interest

Chair

09:35

NHS FDP Cancer360 Final Video

NHSE

09:45

NHS FDP Benefits Video Script – Feedback

NHSE

10:15

Break

ALL

10:30

Tier 2 Inclusive Engagement – Stimulus Packs

DHSC

11:15

Any other business

Chair

Attendees

AttendeesOrganisation

Chair

Cancer Research UK (CHAIR)

Senior Policy Adviser

DHSC

Lead Senior Communications and Engagement Manager

NHS England

FDP Communications

NHS England

FDP Project Support Officer

AGEM

Panel member

National Data Guardian

Lay member

Independent member

Lay member

Independent member

Lay member

Independent member

Lay member

Independent member

Lay member

Independent member

Lay member

Independent member

Apologies

ApologiesOrganisation

Lay member

Independent member

1. Introductions

Panel members were welcomed to the meeting by the Chair, who also ran through the agenda. The action notes from the previous meeting were approved with one minor amendment. No conflicts of interest were declared.

2. NHS FDP Cancer360 final video

The NHS FDP team presented the final NHS FDP Cancer360 animation to the panel, following feedback given at a previous meeting. Panel feedback to the final video included:

  • The voiceover, graphics and overall flow were well received
  • The pace of the visuals was considered slightly fast, which could affect accessibility
  • Short clips could be extracted for use on social media at a slower pace

3. NHS FDP benefits video script – feedback

Following the above agenda, a script for a future 60-second video highlighting the benefits of the NHS FDP was presented. Panel members gave feedback, which included:

  • Statistics needed more context to be meaningful to a general audience
  • Plain language should be used throughout, with clearer explanations of technical terms
  • The benefits to patients should be made more explicit, particularly around how the platform improves care
  • Visuals were suggested to help illustrate key messages, such as clinicians moving from administration to patient care

Action: A more developed version of the script/storyboard to be brought back to the panel for further feedback.

4. Tier 2 inclusive engagement – stimulus packs

DHSC presented on the next phase of public deliberation work for health and care data, focusing on secondary uses such as research and planning. The session covered how participants will be introduced to data opt-outs, legal frameworks and data security, with an emphasis on accessibility and inclusivity.

Panel members gave feedback on the materials and approach. Key themes included:

  • Complex concepts such as opt-outs and legal frameworks needed simplification to avoid overwhelming participants
  • Visual elements such as colour-coded systems should be carefully designed to avoid ambiguity
  • Smaller group and one-to-one sessions were seen as a positive approach for engaging seldom-heard groups
  • The balance between providing enough information and avoiding information overload was acknowledged as an ongoing challenge

5. Any other business

No items were raised.