Health and Social Care Data Public Panel – minutes and action notes: 16 January 2025

Date: 16 January 2025
Time: 9.30 to 11am
Location: MS Teams

Agenda

TimeAgenda itemOwner

09:30

Introductions

Chair

09:30

Review of previous minutes and declaration of interest

Chair

09:40

NHS England SDE – Data Uses Register Engagement

NHS England Communications and Engagement

10:15

Break

ALL

10:25

Feedback on NHS FDP Benefits Webpage

NHS England Communications and Engagement

10:50

PPECAP Recruitment – Update

NHS England Communications and Engagement

10:55

Any other business

Chair

Attendees

AttendeesOrganisation

Chair

Association of Medical Research Charities (CHAIR)

Lead Senior Communications and Engagement Manager

NHS England

Senior Policy Adviser

DHSC

Senior Consultant

NHS England

Communications and Engagement Manager

NHS England

Project Support Officer

AGEM

Panel member

Office of the National Data Guardian

Lay member

Independent member

Lay member

Independent member

Lay member

Independent member

Lay member

Independent member

Lay member

Independent member

Apologies

ApologiesOrganisation

Lay member

Independent member

1. Introductions

Panel members were welcomed to the meeting by the Chair, who also ran through the agenda. A new Chair was welcomed for this meeting and members introduced themselves.

The action notes from the previous meeting were approved for publication with one minor amendment. No conflicts of interest were declared.

2. NHS England SDE – Data Uses Register engagement

NHS England’s Secure Data Environment (SDE) team presented on engagement plans for a Data Uses Register. The presentation gave an overview of the SDE network and engagement plans; members were asked to review the materials to be used.  

Panel feedback included:

  • The need for clearer, more accessible language around SDEs and patient data
  • The importance of consistency in terminology across different SDEs
  • Ensuring engagement considers the public’s existing familiarity with SDEs

3. Feedback on NHS FDP Benefits webpage

The communications team invited panel members to share verbal feedback on the NHS FDP Benefits webpage, which members had been asked to review ahead of the meeting. Key themes from the feedback included:

  • Navigation was generally straightforward from the landing page, but moving through the page itself was more difficult
  • The page name could better reflect its content and benefit to the public
  • More visuals and clearer formatting were needed to break up large amounts of text
  • The page should be tailored primarily for patients, using plain language and diverse case studies
  • Functionality across different devices needed to be considered

4. PPECAP recruitment – update

An update was provided on PPV partner recruitment, covering applicant numbers and timelines. Members were informed that they would be kept updated throughout the process.

5. Any other business

No items were raised.