Health and Social Care Data Public Panel – minutes and action notes: 30 January 2025

Date: 30 January 2025
Time: 9.30 to 11.30am
Location: MS Teams

Agenda

TimeAgenda itemOwner

09:30

Introductions

Chair

09:30

Review of previous minutes and declaration of interest

Chair

09:40

Pharmacy, Dental and Optometry Data for Secondary Uses

NHS England

10:10

Break

ALL

10:20

Large Scale Public Engagement – Stimulus Pack

DHSC

11:25

Any other business

Chair

Attendees

AttendeesOrganisation

Chair

Association of Medical Research Charities (CHAIR)

Lead Senior Communications and Engagement Manager

NHS England

Senior Policy Adviser

DHSC

Communications and Engagement Manager

NHS England

Pharmacy, Optometry and Dental Analysis, Strategy Analysis

NHS England

Project Support Officer

AGEM

Panel member

Office of the National Data Guardian

Lay member

Independent member

Lay member

Independent member

Lay member

Independent member

Lay member

Independent member

Apologies

ApologiesOrganisation

Lay member

Independent member

Lay member

Independent member

1. Introductions

Panel members were welcomed to the meeting by the Chair, who also ran through the agenda. The action notes from the previous meeting were approved for publication. No conflicts of interest were declared.

2. NHS England pharmacy, dental and optometry data for secondary uses

NHS England presented plans for the use of pharmacy, dental and optometry data for secondary purposes. The presentation covered the current data landscape across these areas and the aims of proposed changes.

Panel members asked questions and raised points, feedback included:

  • The need for clear public-facing communications on the benefits to patients, not just organisations
  • The importance of explaining how the data would be kept secure
  • Whether providers operating as private companies could be directed by NHS England
  • The value of a clear vision statement to share the purpose and benefits of the plans

3. Large scale public engagement – stimulus packs

DHSC presented materials for a public deliberation programme on health and social care data, with the aim of gathering public views on how they expect their data to be used by the NHS.

Panel members asked questions and gave feedback including:

  • Materials should be simplified and shortened to avoid disengagement
  • Visuals could be used more effectively to distinguish between different types of data held by different organisations
  • Examples of secondary data uses were helpful but could be expanded to make them more relatable
  • Holding workshops across different locations was seen as a positive approach to gathering diverse perspectives

4. Any other business

No items were raised.