Agenda

Attendees

1. Introductions

Panel members were welcomed to the meeting by the Chair. The minutes of the previous meeting were agreed with two spelling corrections.

No declarations of interest were noted.

2. Ways of working

The panel were reminded of the ways of working, with the group still in its formation stage. Key points raised included:

• A suggestion was made to introduce a “closing the loop” approach, with regular summary updates from subgroups on key issues and recommendations
• The importance of capturing the impact of patient voice contributions was discussed, with a suggestion to provide quarterly impact updates

Action: The secretariat to explore how the impact of patient voice contributions could be captured and reflected in future meetings.

3. Single Patient Record

The panel received a presentation on work to develop a single patient record, covering the vision, current challenges, and public engagement findings. Key points from the discussion included:

• The panel emphasised the importance of co-design and genuine public involvement throughout the process, not just informing the public after decisions have been made
• The panel stressed the need for clear language around concepts such as data ‘ownership’, and clarity on who controls data and the technology on which it sits
• A variety of communication channels should be used, tailored to different audience groups and preferences
• The panel raised questions about data accuracy, GDPR rights, and how information from older systems would be incorporated

Action: The team to provide an update on the progress of the Single Patient Record at a future meeting.

4. Public engagement – summary of findings

The panel received a summary of findings from the large-scale public engagement programme. A draft animation developed to communicate the key themes and findings to a general audience was shared for feedback.

Key points raised included:

• Quotes on screen were difficult to read whilst also listening to the voiceover
• The target audience of general public members, who may have lower data literacy, should be kept in mind throughout
• The meaning of the national data opt-out should be made clearer
• All acronyms should be written out in full
• Key points and phrases should be prioritised over dense text

Action: The animation to be revised to simplify language, remove jargon, expand all acronyms, and ensure the content is accessible to a general audience.

5. Any other business

A brief update on HR onboarding processes and involvement payments was provided. Members were reminded of the upcoming PPV partner survey.

No further items were raised.