The care.data programme was established by NHS England and the Health and Social Care Information Centre to securely bring together health and social care information from different healthcare settings, such as GP practices, hospitals and care homes, in order to see what’s working really well in the NHS – and what we could be doing better.
Dame Fiona, the National Data Guardian for Health and Care, has now published her review of data security and consent.
In her review, Dame Fiona recommended the Government consider the future of the care.data programme, as the consent and opt-out model proposed by the review goes further than the approach that was planned for care.data and its pathfinder areas.
In light of these recommendations, NHS England has taken the decision to close the care.data programme.
However, the Government and the health and care system remain absolutely committed to realising the benefits of sharing information, as an essential part of improving outcomes for patients. Therefore, this work will now be taken forward by the National Information Board working closely with those in primary care, in order to retain public confidence and drive better care for patients.
The work developed by the care.data programme will be invaluable to the National Information Board as it moves forwards with this work.
See the Written Ministerial Statement which describes closure of the care.data programme, announces the publication of the outcome of the consultation on the NDG role and launches a consultation on the security standards and consent model set out in the review.
If you would like to learn more about the care.data programme including past events and board papers, please view care.data documents.