Rethinking Strategies for Positive Newborn Screening Result Delivery (ReSPoND): a process evaluation of co-designing interventions to minimise impact on parental emotional well-being and stress

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Chudleigh et al (2017) states that there is evidence that many parents are dissatisfied with how New Born Screening (NBS) results are communicated to them and that poor communication practices can lead to various negative sequelae.


They highlighted that despite guidance, these results are inconsistently delivered to parents across geographical regions. This study aims to co-design, implement and undertake a process evaluation of new, co-designed interventions to improve delivery of initial positive NBS results to parents. In addition, information about indicative costs associated with different communication strategies will be determined. This study has the potential to address issues of unwarranted variation and better use of resources.