Learning Disability and Autism – resource hub

This is a resource hub for professionals working to transforming care for individuals with a learning disability, autism or both across the South East.

There are also a number of resources available on the national NHS England learning disability and autism pages.

On this page:

 

COVID 19 vaccination

All people with a learning disability have now been invited to have a COVID-19 vaccination at part of priority group 6. This is provided they are on the GP Learning Disability Register.

There are plenty of resources available to help the delivery of the vaccine in this group:

 

Learning Disabilities Mortality Review (LeDeR)

People with a learning disability often have poorer physical and mental health than other people and may face barriers to accessing health and care to keep them healthy. Too many people with a learning disability are dying earlier than they should, many from things which could have been treated or prevented.

The learning from deaths of people with a learning disability (LeDeR) programme was set up as a service improvement programme to look at why people are dying and what we can do to change services locally and nationally to improve the health of people with a learning disability and reduce health inequalities. By finding out more about why people died we can understand what needs to be changed to make a difference to people’s lives.

Reporting the death of a person with a learning disability

Anyone can notify a death to the LeDeR programme and the more deaths we are aware of the more accurate the information we have will be.

To report a death please use the online form on the LeDeR website or call 0300 777 4774

Further Information

To find out more, please visit the NHS website at: NHS England » Learning Disability Mortality (death) Review programme

 

Easy read support

Easy read is a method of presenting written information to assist those who have difficulty reading. This is widely used to communicate with people who have a learning disability, autism or both.

Creating important documents in easy read helps us meet our legal duty to communicate accessibly – vital given as of the 1st August 2016, all organisations that provide NHS care or adult social care are legally required to follow the Accessible Information Standard.

If you work within a learning disability and autism team in a Transforming Care Partnership/ICS or elsehwere in the South East system, please contact lauren.hammond8@nhs.net should you require any support or advice regarding creating accessible/easy read documents.

 

Annual Health Checks

This communications toolkit was designed to aid increased awareness and understanding of the GP learning disability register, Annual Health Check and Summary Care Record with Additional Information – available to people with learning disabilities (including people with autism who also have a learning disability) so they Don’t Miss Out.Posters

Graphics

Facebook graphics:

Twitter graphics:

Guides and templates

Created by Mencap with NHS England’s support for people with a learning disability, their families and carers:

Summary Care Record with Additional Information (SCRAI)

Guidance for GPs to use SCR to make more information available across care settings is available on the NHS Digital website. Share this easy read patient leaflet explaining SCR AI.

National electronic Health check (Learning Disabilities) clinical template

This document is only a guide – providing an initial content summary and overview. The new National Electronic Health Check (Learning Disabilities) Clinical Template will be made available through the GP system.

Royal College of GPs (RCGP) step-by-step toolkit

The RCGP, in partnership with the Clinical Innovation and Research Centre, developed and published a step-by-step toolkit focussed on annual health checks for people with learning disabilities. The toolkit collects guidance and resources to help GPs, practice nurses and the primary administration team organise and perform quality AHCs on people with a learning disability.

Access this toolkit via the RCGP website.

 

Cervical screening

Cervical screening can detect early changes to avoid cervical cancer developing but the number of women attending for screening is falling year on year. However, fewer than 1 in 3 eligible females with a learning disability recieve cerviat

Here are some resources to support you to get the message out about this important cancer prevention initiative :

Resources

 

Flu vaccination

People with learning disabilities and their carers can have a free flu vaccination to help them stay well every winter.  Here is a communications toolkit we developed a couple of years ago, including useful resources to help raise awareness, which are still valid year on year.

Download the high resolution resources (highlighted in the toolkit) below:

 

Breast screening

In the UK, women with learning disabilities are the least likely to attend breast screening. You can help encourage more take up by using the resources below:

Graphics suitable for print (e.g. newsletters, magazines) and online (e.g. website, Facebook)

Suitable for Twitter

Additional resources:

Template Easy Read letters developed in Cornwall

Breast Cancer Care: Your breasts, your health