South West and Wales Congenital Heart Disease Network

The Network brings together clinicians, managers, patient/family representatives and commissioners from across the region, who work together to support patients of all ages with a congenital heart condition, and their families/carers.

The network comprises:

  • 18 adult and 19 paediatric providers, covering level 1 (specialist surgical), level 2 (specialist medical) and level 3 (local centre) services
  • Over 6,500 children and 8,000 adults with congenital heart problems
  • 30 clinics per week, seeing more than 20,000 outpatient attendances per year
  • Over 40 specialist and link nurses
  • 37 paediatricians with expertise in cardiology
  • 17 adult cardiologists with a specialist congenital interest
  • Over 425 heart operations per year
  • 11 patient and family representatives
  • A core network team, consisting of a Clinical Director, a Manager, Lead nurses and a Support Manager.

The Network team is hosted by University Hospitals Bristol and Weston, but is an independent body and is accountable to its Board members.