In the latest of a series of blogs on Personal Health Budgets, mother Angela Lane explains how they come with their challenges but working through the teething problems is well worth it:
My daughter Cherry has Rett syndrome, which is a rare condition that affects brain development and causes physical and mental disability.
We have had a Personal Health Budget for Cherry since 2013, the benefits of which are profound and mean we can show people that Cherry does have a voice.
It’s taken some time for me to write this blog, as there are periods in life when multiple demands sap me of time and energy for my own projects. But writing about my daughter’s life and the issues we overcame to set up her personal health budget is hugely important to me, especially in light of recent negative press about them.