Long term conditions

Anne Longfield appointed by NHS to help transform care of children and young people with a learning disability and autism

The NHS has appointed former Children’s Commissioner Anne Longfield OBE to help transform the care of children and young people with a learning disability and autism. As the new independent chair of the Learning Disability and Autism Children and Young People’s Steering Group, Anne will champion the rights of children and young people to ensure […]

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NHS England strikes deal on life-saving gene-therapy drug that can help babies with rare genetic disease move and walk

A life-saving drug that can enable mobility in babies and young children suffering from a rare genetic condition will be available on the NHS, chief executive Sir Simon Stevens announced today. Zolgensma, which has a reported list price of £1.79 million per dose and is labelled the most expensive drug in the world, will be […]

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Landmark NHS deal to open up access to life-changing cystic fibrosis drug

From today thousands of NHS cystic fibrosis patients in England can benefit from a ‘transformative’ treatment for cystic fibrosis. NHS patients will be among the first in Europe to be prescribed Kaftrio, which significantly improves lung function, helping people with cystic fibrosis to breathe more easily and enhancing their overall quality of life. The treatment […]

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Life-changing treatment on the NHS for children with rare, deadly disease

Children in England with a rare condition which leads to early death are set to receive treatment on the NHS, after the health service struck a deal with manufacturers. Young people with Batten Disease – an incurable illness which affects the nervous system, causing seizures, visual impairment, mobility loss and early death – will now […]

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England’s top doc backs team GB for transplant games success

England’s top doctor, Professor Stephen Powis, has sent a message of support to Team GB athletes competing in the World Transplant Games this weekend, and joined with them in thanking the donors and skilled NHS teams who made it possible. The NHS’ national medical director, who worked as a kidney transplant specialist, also revealed that […]

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