National Diabetes Experience Survey

The National Diabetes Experience Survey is an England-wide survey about experiences of care among those living with type 1 or type 2 diabetes.​

It is the first NHS survey of its kind. Until now, there has not been a national survey of this scale among people living with diabetes.

People living with diabetes, their carers and healthcare professionals, and local NHS staff were involved throughout the development of the survey and the reports.​

“Our voices have helped make this survey an important turning point. Everyone involved in the provision of care will hear us loud and clear and know exactly where change is needed to provide the best possible diabetes care and support in our journeys through the NHS.”

Andrew, on behalf of the lived experience partner team
“I strongly believe that all people living with diabetes should be given the right support to live a long and healthy life. But we know that there are inequalities in healthcare outcomes and experiences. This survey is our bridge to understanding the “why”. It will give people living with diabetes the chance to have their voice heard. The survey results will help us to understand the barriers that people face. This means that I, and other clinicians, can better support and communicate with people living with diabetes in the future.”

Dr Sophie Harris, Chair of the Advisory Group, Diabetes Clinical Lead and Consultant

Aim of the survey

The National Diabetes Experience Survey aims to gather patient experience and insights to inform future policy and health service improvements. The insight gathered through this survey will support policy decision makers to identify areas of importance to people living with diabetes, and to make informed decisions about how best to support patients. For example, to understand how to promote effective self-management of diabetes or encourage people to access NHS services.

Results

Results will be published shortly and will be available at www.diabetessurvey.co.uk

Contact us

If you have any queries about the National Diabetes Experience Survey, please email england.digitaldiabetes@nhs.net.