Learning from deaths of people with a learning disability (LeDeR)

People with a learning disability often have poorer physical and mental health than other people and we know that too many people with a learning disability are dying earlier than they should have from things which could have been prevented.

The learning from deaths of people with a learning disability or LeDeR programme was set up to look at why people are dying.  By finding out more about why people died we can learn about what can be changed to make a difference to people’s lives.

The programme is using what we find out from reviews to change the care and treatment which people with a learning disability will get in the future – we call this learning into action. This is our response to the University of Bristol’s Review of deaths of people with a learning disability LeDeR report.  An easy read version of both reports are available.

To help us do this it is important that we know about as many deaths of people with a learning disability as possible.  Anyone can tell us about a death including people with a learning disability, family members, friends and paid staff.

How do I tell you about a death of someone with a learning disability?

You can tell us about a death by filling in this form on your computer or by calling us on 0300 777 4774, if you need help to report a death you can call us and we will help you.

The University of Bristol will then tell someone in your local area who will look at what happened in more detail.

Latest news

News

Roll out of the world’s first national review of deaths of people with learning disabilities
10 February 2017

Blogs

Helping people with a learning disability live longer by tackling the causes of early death
22 June 2018 – John Trevains

Reflections on the Learning Disability Premature Mortality Review Programme
20 June 2018 – Ray James CBE

Family carer shares her tips on getting the very best health care for people with learning disabilities
14 August 2017 – Robina Mallett