Learning disability and autism programme: data and information

The NHS Long Term Plan works to improve the health of people with a learning disability, people who are autistic or both, and to support them to live well at home.

This webpage brings together key data from health services to show the performance of the NHS in delivering our Long Term Plan commitments.

Reducing how many people are in hospital

Adult inpatient rates by transforming care partnership (learning disability and autism)

Information on the number of  adults with a learning disability, who are autistic or both, in a hospital providing specialist mental, learning disability or autism health care per 1,000,000 adults is available in the table below:

Learning disability and autism – adult inpatient rates by TCP – September 2020

Rates are reported by Transforming Care Partnerships (TCPs). TCPs are made up of clinical commissioning groups, NHS England’s specialised commissioners, Provider Collaboratives and local authorities. They work with people with a learning disability, autistic people  and their families and carers to agree and deliver local plans for the Learning Disability and Autism programme. There are 44 TCPs in England.

Inpatients: by age and gender (learning disability and autism)

Information on people with a learning disability, people who are autistic or both, in a hospital providing specialist mental, learning disability or autism health care broken down by age and gender is available in the table below:

Learning disability and autism – inpatients by age x gender – September 2020

Inpatient trends and change over time (learning disability and autism)

The following information is available:

  • People admitted and people discharged from specialist mental, learning disability or autism hospitals from March 2015 to September 2020
  • People in specialist mental, learning disability or autism hospital broken down by patient category (learning disability, autism or both) and by inpatient setting (ward type and ward security) from March 2015
Learning disability and autism – patient trends and change over time – September 2020 

Patients on restriction (learning disability and autism)

Information on the number of people in hospital on a restricted section of the Mental Health Act:

Learning disability and autism – patients on restriction – September 2020

Learning disability mortality review – LeDeR (learning disability)

The Learning Disability Mortality Review (LeDeR) programme was established to support local areas across England to review the deaths of people with a learning disability, to learn from those deaths and to put that learning into practice.

Information is collected about LeDeR reviews in each clinical commissioning group (CCG) area.

This includes:

  • how many deaths of people with a learning disability have been reported in each CCG
  • how many deaths are being reviewed at any time
  • how many reviews have been finished
  • How many reviews are not allocated to a reviewer yet

Data below are as at 30 September 2020:

LeDeR – Notifications and reviews – Sept 2020

A Data Quality Statement is available here:

Data Quality Statement – LeDeR – Sept 2020

Annual health checks (learning disability)

The learning disability Annual Health Check scheme encourages GP practices to identify all of their patients aged 14 and over with a learning disability, to maintain a learning disability register and to offer patients on the register an Annual Health Check. The Annual Health Check includes producing a health action plan for each person.

Data on the number of Annual Health Checks (AHCs) that have happened is published quarterly at GP practice level by NHS Digital.

Data on the number of Annual Health Checks each at CCG level are available in the table below:

Learning disability annual health checks – September 2020

Helpful links

The learning disability improvement standards for NHS trusts

NHS Improvement has developed new standards to help NHS trusts measure the quality of care they provide to people with a learning disability, people who are autistic or both.

Learning disability services statistics, NHS Digital

Statistics on Learning Disabilities and Autism from the Assuring Transformation collection and the Mental Health Services Data Set (MHSDS) are published each month by NHS Digital.

Easy read and plain english

A plain English summary of these reports is available here:

Learning disability and autism programme: Data and information – Plain English – September 2020

An easy read summary of these reports is available here:

Learning disability and autism programme: Data and information – easy read – September 2020