Information sharing: building our shared view

The effectiveness of INTs in London will be dependent on the way that information is shared, used to make informed decisions, and to increase the speed in which actions can be taken and evaluated. INTs require infrastructure that supports real-time access to data on demand, activity, and capacity, as opposed to snapshot information. Effective information sharing will serve as the foundation for coordinated care delivery and population health management across London’s region, five systems and associated place partnerships. This means:

Expanding the OneLondon Shared Care Record model across London.

OneLondon was created in May 2018 working with Londoners to transform services by joining up the information needed for fast, safe, effective care. OneLondon is a collaboration of London’s five integrated care systems and the London Ambulance Service, supported by NHS England (London region), the GLA and London’s three Health Innovation Networks.

The London Care Record provides the capability to link GP surgeries and hospitals in London with local authorities, community health and care services, out of hours, the London Ambulance Service and other NHS 111 and mental health services. As some people living outside London receive specialist treatment in the capital, partners in Oxford, Milton Keynes, Bedfordshire, Hertfordshire, Essex, and Suffolk are also part of the London Care Record.

OneLondon will provide us with a consistent, standardised, accessible view of a person’s healthcare history, essential for providing informational continuity and quality of care. As an existing Secure Data Environment for data sharing across London, this will reduce duplication, improve clinical decision-making and enhance the timeliness of care delivery. Building on this capability, London will continue to support the uptake of related national developments, including the Federated Data Platform in England.

We will ensure as London that as we adopt new platforms and systems, these are transparent and interoperable, cater to both technical and non-technical users, and are securely and appropriately accessible to those working within our neighbourhood teams. This includes intuitive dashboards and real-time access to critical data, where and when it is needed.

We will roll out London-wide data sharing frameworks to enable integrated datasets to inform proactive health planning, moving beyond purely health and activity data to encompass wider determinants of health. By standardising protocols, London can avoid duplication and ensure that data-sharing efforts are consistent across all boroughs and neighbourhood providers. A unified approach will include statutory and non-statutory organisations, such as VCFSE partners, and understanding how they can be included within data sharing agreements as appropriate. Collaboration across sectors will ensure that the data-sharing framework is comprehensive and inclusive and can be applied in a consistent way, and that all partners approach information and data usage in the same way and have a clear understanding of what exists across the system and how it relates to the work they do as individual professionals and organisations.

We will address regionally the barriers to effective information sharing such as inconsistent governance frameworks, data privacy, and technological fragmentation. This means collaborating across sectors and with residents, patients and service users to develop data sharing agreements and frameworks which build trust and support better outcomes.

We will future-proof our information systems to meet evolving needs working as London to ensure information sharing systems, frameworks and agreements are designed with a future focus. This includes considerations around appropriate use of information and data related to wearable technology, remote monitoring, and patient-held data; as well as the governance structures that enable information sharing across the public, private and voluntary sectors. We will commit to doing this once for Londoners, working at a London level to understand how we effectively apply emerging technologies such as AI Triage, Guidance, and Predictive Analytics to support our neighbourhoods, places and systems to make the most effective use of available resources.

Within each place partnership, we will apply local data and information to support both population health approaches and day to day delivery of care. This includes patient level activity and outcome data to proactively identify vulnerable people and ensure our neighbourhood health and care services can respond proactively and to prevent exacerbating health needs.

We will develop principles and practice to enable Londoners to “own” their own care record and data, supporting a move towards greater levels of independence, strength based models and patient activation. We need to build robust consent processes to enable this. Involving residents in the design of data-sharing agreements across London will be key to fostering trust and ensuring systems reflect community priorities, as well as building public confidence that the health and care systems in London are working effectively together to meet their current and future needs.