People have the right to be involved in all health and social care research. Excellent public involvement is an essential part of health and social care research and has been shown to improve its quality and impact. People’s lived experiences should be a key driver for health and social care research.
When we talk about public involvement, we mean all the ways in which the research community works together with people including patients, carers, advocates, service users, and members of the community. Excellent public involvement is inclusive, values all contributions, ensures people have a meaningful say in what happens and influences outcomes, as set out in the UK Standards for Public Involvement.
Working together we will support the research community to carry out excellent public involvement. We will provide or share guidance, policies, systems, and incentives. We will:
- listen to and learn from the people and communities we involve and apply and share that learning;
- build and share the evidence of how to involve the public and the impact this has;
- support improvements in equality, diversity, and inclusion in public involvement;
- promote the UK Standards for Public Involvement
We will embed this commitment into the decision-making processes of our organisations.