Liz has been Support Team Manager at Spinal Muscular Atrophy UK (SMA UK) since May 2011. She has a long professional background in social work and disability rights/services in both the voluntary and statutory sector in the UK and New Zealand. She now works on Information Coordination at SMA UK – a patient group/charity that has been providing information and support and funding and supporting research-related initiatives since 1985. The charity actively advocates tor access to treatments and better health and social care with and for the SMA community.