NHS England will provide a promising new treatment which can prolong the lives of children with a rare genetic condition after negotiating a deal with the manufacturer. Nusinersen, also called Spinraza and made by Biogen, is the first treatment that targets the underlying cause of spinal muscular atrophy (SMA). The condition affects the nerves in […]
New and expectant mothers across the country can now access specialist mental health care in the area where they live, NHS England announced today. The landmark rollout of specialist perinatal community services across the whole of England, means that mums and mums-to-be who are experiencing anxiety, depression or other forms of mental ill health should […]
The Better Births three year on event will be held in Manchester on 7 March 2019 and will see over 500 delegates coming together to celebrate the progress we have made in the maternity transformation programme since 2016 and to look forward to the next few years and the implementation of the NHS long term […]
Children and adults with a rare inherited bone disease will be able to access a potentially life-enhancing drug, thanks to an innovative deal between NHS England, NICE and manufacturer Alexion. Hypophosphatasia (HPP) is a rare inherited bone condition that can appear any time from before birth to adulthood. In babies it is often fatal, and […]
From April, parents of the 136,000 babies born across London each year will be able to record and manage information about their child’s health and development online. The NHS in England has today announced a digital version of the Redbook will be rolled out across London, answering calls from parents who often lose information when […]
We are reviewing and updating these webpages to reflect the current work of the maternity and neonatal programme. Implementing Better Births: Continuity of Carer In 2016, the National Maternity Review’s report, Better Births, set out a vision for maternity services across England to become safer and more personalised. Across England, maternity teams have been working […]
We are reviewing and updating these webpages to reflect the current work of the maternity and neonatal programme. Better Births, the report of the National Maternity Review was published in February 2016 and set out a clear vision: for maternity services across England to become safer, more personalised, kinder, professional and more family friendly; where […]
NHS England publishes new guidance that aims to reduce stillbirths in England. There are currently around 665,000 babies born in England each year, but there are over 3,000 stillbirths. Despite falling to its lowest rate in 20 years, one in every 200 babies is stillborn in the UK, more than double the rate of nations […]
In March 2015, Simon Stevens, Chief Executive of NHS England announced a major review of maternity services as part of the NHS Five Year Forward View. Baroness Julia Cumberlege was asked to independently lead the review working with a panel of experts and representative bodies. The scope of the review was to assess current maternity […]
Stillbirth and neonatal death have long been taboo subjects for conversation in society – nobody likes to think about babies dying, never mind talk about it. Perhaps this unwillingness by many to acknowledge that these tragic pregnancy outcomes do happen is one of the reasons why stillbirth rates have not fallen significantly in the last […]