The Care.Data Programme closed in 2016 GP-led clinical commissioning groups in four areas of the country are to help develop the care.data programme as it moves into a ‘pathfinder stage’. The programme will be rolled out in participating GP surgeries in the CCG areas of Leeds North, West and South and East, Somerset, West Hampshire and […]

The Care.Data Programme closed in 2016 Following today’s media coverage on the care.data programme NHS England would like to clarify the following points in relation to patient care. Under the care.data programme no patient data has been collected so far from GPs The Pathfinder stage will test the care.data programme in four different English regions The […]

What is the Emergency Care Data Set? The Emergency Care Data Set (ECDS) was first introduced in 2017 and is now embedded as the national data set for urgent and emergency care. The ECDS includes a wide variety of data items, from patient demographics and chief complaint to diagnosis and discharge. Capturing this information builds an […]

Data from patient health and adult social care records helps us to improve individual care, speed up diagnosis, plan local services and research new treatments.​ Ensuring that staff and patients have access to the right data, at the right time, is vital to the NHS providing effective, safe, good value services. Data can save lives. […]

This is the draft technical output specification for the Emergency Care Data Set (ECDS) v5.1 – 12th December 2016

The Care.Data Programme closed in 2016 NHS England is introducing a modern information service on behalf of the NHS called care.data. The service will use information from a patients’ medical record to improve the way that healthcare is delivered for all. The service will only use the minimum amount of information needed to help improve […]

The Care.Data Programme closed in 2016 The suggestion by Sky News that it would be ‘easy’ to uniquely identify any one person through the data collected for care.data is incorrect. Patient data security is a top priority for the NHS and is taken extremely seriously. The likelihood of being able to identify an individual is negligible: GP records, […]

Increased understanding of emergency care will improve patient outcomes and experience Over the last few years it has become clear that we need to better understand how and why people attend Accident and Emergency (A&E) Departments. The Emergency Care Data Set (ECDS) has been designed to do just that. This new data set will be […]

The Care.Data Programme closed in 2016 In recent weeks, we have heard from patients, many GPs, their professional organisations and, groups like Healthwatch. They have told us very clearly that patients need more time to learn about information sharing, the benefits and their right to object. They have also told us that they understand why sharing […]

The Care.Data Programme closed in 2016 Since the publication of this blog Tim Kelsey has left NHS England. Tim Kelsey, NHS England’s National Director for Patients and Information, explains the important next steps in the programme: I thought it would be helpful to update you on the latest developments around the care.data programme. In February, […]