Purposes for processing
The Targeted Lung Health Checks (TLHC) programme is a new and ground-breaking flagship programme of work in England which will contribute to the ambition of the NHS Long Term Plan to improve early diagnosis and survival for those diagnosed with cancer.
The TLHC programme targets those most at risk of lung cancer and will initially work with CCGs who have some of the highest rates of mortality from lung cancer. The programme will work with ten projects covering fourteen CCGs over the next four years to deliver the programme to approximately 600,000 eligible participants.
People aged over 55 years old but less than 75 years old that have ever smoked will be invited to a free lung check.
Following the lung health check those assessed as high risk will be offered a low dose CT scan. We estimate approximately 3,400 cancers will be found – many earlier than we would have done otherwise – and so we will be able to offer more treatments, such as curative surgery which will save people’s lives.
NHS England is conducting a national evaluation to understand the impacts and economics of the programme. The evaluation is expected to demonstrate impacts on patient health outcomes, experience and wider health inequalities. Findings from the evaluation will ensure an evidence-based approach to NHS England’s longer-term strategy for wider roll out of a targeted screening programme of this kind.
This approach involves an analysis of data collected by the programme, and information recorded in interviews with patients and staff about their experiences.
Ipsos Mori, together with the Strategy Unit at the Midlands and Lancashire Commissioning Support Unit (CSU), which is part of NHS England, have been appointed jointly as our national evaluation partner.
Sources of data and categories of personal data
CCGs coordinate the TLHC service locally acting for their constituent GP practices. Participants are invited for a lung health check by their CCG, or constituent GP practice, before being referred into secondary care for further investigations and treatment (where necessary).
Personal data about patients is collected across the pathway by CCGs to enable the delivery of the TLHC service locally. The national evaluation partner receives a data set from the CCGs for the purpose of evaluation. Participants will not be identifiable from this dataset. The dataset will include information on sex, age, marital status, main language, occupation, information about diagnosis, treatment and outcomes.
The evaluation partner will also collect information about the experiences of participants and staff, facilitated by the CCG. Information will be recorded in a way to ensure that individuals cannot be identified.
Categories of recipients
Ipsos Mori and the Strategy Unit at the Midlands and Lancashire CSU, receives pseudonymised personal data (pseudonymised by CCG locally). Ipsos Mori also collects information through interviews, which will be anonymised before sharing with NHS England. Ipsos Mori acts as a processor for NHS England for the purposes of the evaluation.
Legal basis for processing
For GDPR purposes NHS England’s lawful basis for processing is Article 6(1)(e) – ‘…exercise of official authority…’;
For the processing of special categories (health) data the basis is 9(2)(h) – ‘…health or social care…’, and 9(2)(j) ‘…statistical purposes…’.