Frequently asked questions about Learning from deaths of people with a learning disability (LeDeR)
Anybody with a learning disability who dies, is over the age of four and lives in England will have a LeDeR review.
Each part of England has a local steering group which makes sure that LeDeR reviews are taking place and that the things which we learn from those reviews are leading to changes.
To get in touch with your local steering group you should contact your nearest clinical commissioning group which is listed under which region it is in.
Assuring transformation data is what we call some of the information we collect about people with a learning disability, autism or both who are getting care in hospitals for their mental health or because they have had behaviour that can be challenging. You can find the latest information here.
Health and care of people with a learning disability is information which has been collected by GP practices to identify any differences in care and treatment of people with a learning disability compared to the rest of the population.
Information is collected about the progress of reviews in each clinical commissioning group (CCG) area.
- how many deaths the CCG have been told about
- how many deaths are being reviewed at the time
- how many reviews have been finished
- and how many reviews are not allocated to a reviewer yet.
A LeDeR review might not be started if the death of a person with a learning disability is subject to other investigations such as a police investigation, serious case review, safeguarding adult review, safeguarding adults enquiry, domestic homicide review, serious incident review, coroners’ investigation or child death review.
We are working on lots of different pieces of work which are all helping to improve people’s health so that people don’t die of something which could have been prevented in the future.
- Reasonable adjustments
- NHS RightCare
- Personal health budgets
- Mortality review (LeDeR)
- Summary care records
- Patient Online
- Always Events
- NHS quality checking
- Annual health checks
- Stopping over medication of people with a learning disability, autism or both (STOMP)
- Supporting Treatment and Appropriate Medication in Paediatrics (STAMP)
- Ask Listen Do – supporting people with feedback, concerns and complaints