The Cancer Quality of Life Survey is a national survey run by NHS England and NHS Improvement and Public Health England. The survey is for people in England who have been diagnosed with cancer.
From 2020, people who have had a breast, prostate or colorectal ( cancer diagnosis are being asked to complete the survey around 18 months after diagnosis.
As of June 2021, over 28 000 people have completed the survey. We are pleased to confirm that we will now begin the roll out to other cancers from the Autumn:
Since April 2021 we have been able to provide individual summary reports to patients who complete the survey online, or who request a report via email.
At the end of June, we completed a small trial to deliver these summary reports directly to the patient’s GP, unless the patient declined to do so. We are currently evaluating this.
Our goal is to empower patients to have meaningful conversations with their health care professionals about their quality of life and enable them to access support.
From July 2021, as well as all breast, prostate and colorectal cancer patients, invitations will also be sent to a random 10 sample of patients from each of the other included cancers This is ahead of a planned roll out to 100 of patients from Autumn 2021.
The first public release of results from the survey will be published. Initially this will include data from the first three cancer types, but more will be reported as the survey expands. These results will help us to work out how best to support people to live as long and as well as possible.
View the next sections of this report: