NHS England is committed to listening to and engaging with the public, patients and stakeholders to help design and deliver the federated data platform (FDP) programme.
FDP engagement portal
In the engagement portal you can:
- Register you interest in taking part in future FDP engagement activity
- Leave feedback on any aspect of the FDP programme
- Ask a question.
Programme advisory groups
The FDP programme is supported by a number of stakeholder groups:
Health Data Patient and Public Engagement and Communications Advisory Panel
The Health Data Public and Patient Engagement and Communications Advisory Panel (also know as PPECAP) includes representation from a diverse range of patient and public representatives (known as lay members), supported by organisations who champion the voice of the public and patients.
These organisations are:
- Office of the National Data Guardian
- Understanding Patient Data
- Cancer Research UK (CRUK)/Association of Medical Research Charities (AMRC)
The panel plays a vital role in helping to shape communications content, plans for public engagement and in supporting the development of meaningful and accessible communications materials. This is in relation to GP data, the FDP programme, as well as workstreams within the data policy team.
FDP check and challenge group
The FDP check and challenge group is a new stakeholder advisory group which provides strategic advice to NHS England’s Federated Data Platform on communications, engagement, and transparency.
It considers patient, public, professional, and ethical context. and complements the Patient and Public Engagement and Communications Advisory Panel (PPECAP).
The membership of the group is still being finalised, however stakeholders including the National Data Guardian and clinical and patient representative organisations are confirmed, with National Voices chairing the group.
The full membership, terms of reference, and action notes from meetings, will be published for each group once approved by the group members.