Governance

Genomics Clinical Reference Group

The Genomics Clinical Reference Group (CRG) has been convened to support implementation of the NHS Genomic Medicine Service (GMS). Through its professional, patient and public representation, the Genomics CRG carries out the following functions:

  • Advise on clinical policy and strategy for genomics, including implementation of NHS Long Term Plan commitments and future development of the NHS GMS;
  • Oversee a clear and transparent process for annual review of the National Genomic Test Directory (supported by three test evaluation working groups covering rare and inherited disease, cancer and pharmacogenomics),
  • Support activities to raise awareness and embedding of genomics across all clinical specialties; and
  • Advise on, review and develop guidance and service specifications (including the clinical genetics service specification)

If you would like to be involved with the CRG and help shape policies and the approach taken by the NHS Genomic Medicine Service you can sign-up and become a stakeholder.

Test evaluation working groups

Test evaluation working groups play a vital role in supporting the evaluation of changes to the National Genomic Test Directory.

 NHS Genomic Medicine Service People and Communities Forum

The voice of the patient lies at the heart of the NHS Genomic Medicine Service (NHS GMS) and patient and public voice representatives play a vital role in developing, shaping and guiding policies and services.

The NHS GMS People and Communities Forum is made up of patient and public voice members from across the different governance and review groups in the NHS GMS including:

  • Test evaluation working groups
  • Genomics Programme Board
  • Genomics Clinical Reference Group

The forum meets quarterly and acts as a vital group to review and guide the development of policies, services and more. It also plays a key role in providing updates on issues being raised by patients, their families and support groups.