Who is involved in the LeDeR programme?

Managing the Learning from deaths of people with a learning disability (LeDeR) programme involves lots of different organisations but supporting people with a learning disability to live happy, healthy lives is the responsibility of the whole of society. This is how different people and organisations are supporting LeDeR:

NHS England

The LeDeR programme is planned and paid for by NHS England. We make sure that the programme is helping to improve the quality of health and social care for people with a learning disability.

We do this by supporting local agencies and health professionals to do LeDeR reviews and use their learning to change the way they provide services in their area and to learn from other areas who are doing good work.

The University of Bristol

The LeDeR team based at the University of Bristol supports local areas in England to review the deaths of people with learning disabilities. The team at the university is responsible for:

  • Being told about a person’s death and recording it so the review process can be started.
  • Supporting the online LeDeR review system, an electronic record where the paperwork, medical notes and findings of each review is stored.
  • Supporting the e-learning platform, the website which helps to train people to become LeDeR reviewers.
  • Carrying out studies on important issues which often come up in many of the reviews.
  • Collecting and studying the information contained in reviews which have been finished.
  • Reporting and telling people about the overall findings of the reviews which have been completed.

Healthcare Quality Improvement Partnership

Healthcare Quality Improvement Partnership (HQIP) manage the contract between NHS England and the University of Bristol.  They provide NHS England with advice and guidance on LeDeR and how it works with other mortality audits.

Clinical commissioning groups

In every area of England there is a local clinical commissioning group (CCG) who make sure that LeDeR reviews are carried out in their area.

LeDeR steering groups

Each area of England has a LeDeR steering group who are responsible for developing plans and making sure that the things we are learning from reviews improves the care and treatment of people with a learning disability in their area.

NHS provider trusts

Hospital trusts across the country provide people to carry out reviews, support staff to do them and make sure that learning from reviews improves the way services are provided for people with a learning disability.

People with a learning disability, families and carers

We know that for a lot of people with a learning disability their families and carers are key to keeping them healthy and recognising when they might be starting to be unwell.

To help us make sure that the NHS is doing everything it needs to we involve people with a learning disability and families and carers in the development of services which impact on them.

People with a learning disability and their families and carers are a very important part of the continuing development and delivery of the LeDeR programme.

GPs and other health professionals

Every health professional involved in the care and treatment of people with a learning disability can support people to live happy and healthier lives through providing things like an annual health check, reasonable adjustments or a stopping over medication of people with a learning disability, autism or both (STOMP) review.  Health professionals are also supporting LeDeR by taking the learning from reviews and making improvements in their services for people with a learning disability.

Working together

Supporting people with a learning disability to live healthy, happy and long lives means that everyone of us has a role to play. Along with families and carers, local authorities, voluntary and NHS organisations we are committed to learning from the deaths of people with a learning disability and improving lives in the future.