Who is involved in the LeDeR programme?

The LeDeR programme involves many different organisations

This is how different people and organisations are involved in delivering the LeDeR programme:

NHS England

The LeDeR programme is planned and paid for by NHS England. We make sure that the programme is helping to improve the quality of health and social care for people with a learning disability.

We do this by supporting local agencies and health professionals to complete LeDeR reviews and use their learning to change the way they provide services in their local area.  We also help local systems to learn from one another so that we can spread learning and good practice across the country.

The University of Bristol

NHS England and NHS Improvement commissions the University of Bristol to support the LeDeR programme. The team at the university is responsible for:

  • Making sure you can notify a death and that a system is in place to allow a review to take place.
  • Managing the online LeDeR review system, an electronic record where the paperwork, medical notes and recommendations for each review is stored.
  • Analysing all the reviews that have been completed and sharing the overall findings and recommendations to the NHS and its partners to improve services in the future.

Clinical commissioning groups

In every area of England there is a local clinical commissioning group (CCG) who are responsible for planning and ensuring provision of health services in their area.  They are responsible for making sure LeDeR reviews are carried out for deaths that happen in their area.

CCGs are responsible for changing the services they plan and buy based on the findings of the reviews in their area and nationally.

CCGs have to publish an annual report about what they have done to change services as a result of the reviews they have completed.

LeDeR steering groups

CCGs work together in local clusters as a local LeDeR steering group.  LeDeR steering groups usually cover a large geography which makes sense in terms of who provides services in an area. LeDeR steering groups develop plans and make sure that the things we are learning from reviews improve the care and treatment of people with a learning disability in their area. Every CCG has to be part of a LeDeR steering group.

In future every LeDeR steering group will have a BAME lead who will be responsible for connecting into local networks and organisations to raise the profile of LeDeR and understand what the additional barriers to services might be for people who are not white and British.

People with a learning disability, families and carers

We know that for a lot of people with a learning disability their families and carers are key to keeping them healthy and recognising when they might be starting to be unwell.

To help us make sure that the NHS is doing everything it needs to we involve people with a learning disability and families and carers in the development of services which impact on them. This is called coproduction.

People with a learning disability and their families and carers are a very important part of the continuing development and delivery of the LeDeR programme.

GPs, hospital trusts, social care organisations and other health and care professionals

Every health and care professional involved in the care and treatment of people with a learning disability can support people to live happy and healthier lives through ensuring that things like annual health checks, reasonable adjustments or a stopping over medication of people with a learning disability, autism or both (STOMP) reviews happen and the action plans are acted upon. Health and care professionals are also supporting LeDeR by taking the learning from reviews and making improvements in their services for people with a learning disability.