Dementia

Overarching aim: To provide leadership and advice to shape London’s dementia services so that people with dementia receive an effective diagnosis, treatment and care.

Key contacts

  • Clinical Director: Jeremy Isaacs, Consultant Neurologist St George’s University Hospitals NHS Foundation Trust
  • Clinical Lead: Nerida Burnie, GP Dementia Lead Kingston CCG
  • Clinical Lead: Suzanne Joels, Consultant Psychiatrist and Clinical Director Ageing and Mental Health Camden and Islington NHS Foundation Trust
  • Clinical Lead: Siobhan Gregory, Director of Nursing Leadership and Quality NHS England and Improvement (London Region)
  • Clinical Programme Lead: Laura Cook
  • Clinical Project Manager: Helen Souris

The NHS Long Term Plan was published in January 2019. The Dementia Clinical Network has summarised some of the key consideration for improving dementia care.

In September 2019 the health and care vision for London was published, one of the 10 areas of focus is ‘better support for people who have dementia’.

Current projects

Dementia diagnosis rates

The London dementia diagnosis rate is currently 71.9% (February 2020), which means it is predicted that there are currently over 19 thousand people in London who have dementia without a diagnosis (65+ years). There is a variation in diagnosis rates across London from 61.1%-89.9%.

You can find resources to help improve dementia diagnosis rates on our publications page.

London Memory Assessment Network

The London Memory Assessment Network was formed in October 2014 and meets quarterly.

The objective of the network is to:

  • Share best practice in clinical care and service design.
  • Provide CPD/learning opportunities that are not readily available elsewhere.
  • Reduce variation in care and improve quality.

Memory service audit

A clinical audit was carried out to provide a baseline picture and review memory services across London. 10 memory services participated in the 2016 clinical audit, which has been published.

Service improvement projects were initiated after the 2016 audit: non-dementia pathways, neuroimaging guidance and streamlining pathways (you can find further information on our publications page)

In 2019, 20 memory services participated in the clinical audit, you can read the report here.

In 2019, the London audit was opened up nationally, 85 services participated in the audit, you can read the report here.

Integrated working

A project was completed in 2019 which trialled a monthly multidisciplinary meeting of memory services, cognitive neurology and neuroradiology to discuss complex and younger cases. You can read the report here.

We are currently completing a project to improve joint working between memory services and Parkinson’s clinics.

GP led diagnosis in care homes

We completed a project to review the effectiveness of a GP lead addressing missed diagnoses in care homes in one London borough. Read our interactive report which includes learning and resources to support implementation of this work in other areas.

We are now completing a pilot project using the same assessment tool to assess housebound patients with advance dementia.

Young onset dementia

As part of an investigation into young onset dementia in London, we attended a formal committee session at City Hall. Read the key findings and the full report.

In response to the recommendations the we were asked to convene London’s research community to identify what research would be most helpful to improve understanding on prevalence and incidence. You can find the meeting notes here.

We was also asked to bring together good examples of post-diagnostic support across London, you can read the report here.

Delayed discharges in acute hospitals

In 2018, we completed to understand the factors contributing to delayed discharges from hospital for people living with dementia, you can read the report here. We are now supporting hospital to implement some of the findings and review their effectiveness.

Our previous hospital project focused on nutrition and carer involvement, see our previous projects page for further information.

Medication

In light of the updated NICE guidelines (2018) shared care protocols for dementia medication were reviewed across London, you can read the findings here. Following on from this, a dementia medication template was produced which can be used by local commissioners and providers, you can download the template in as a Word document here.

Our GP lead has also written some practical advice on prescribing memantine in primary care.

Dementia friendly London

The dementia friendly London initiative supported by the Mayor of London has the ambition for London the be the world’s first dementia friendly capital city. We are working with other sectors such as Transport for London and the Alzheimer’s Society to meet this ambition. You can find out more information here.

Please visit our publications page and previous projects page.